Department of Respiratory Medicine, Repatriation General Hospital, Daw Park, Australia.
Chron Respir Dis. 2012 Feb;9(1):27-35. doi: 10.1177/1479972311433574.
Self-management is of increasing importance in chronic obstructive pulmonary disease (COPD) management. However, there is confusion over what processes are involved, how the value of self-management should be determined, and about the research priorities. To gain more insight into and agreement about the content of programmes, outcomes, and future directions of COPD self-management, a group of interested researchers and physicians, all of whom had previously published on this subject and who had previously collaborated on other projects, convened a workshop. This article summarises their initial findings. Self-management programmes aim at structural behaviour change to sustain treatment effects after programmes have been completed. The programmes should include techniques aimed at behavioural change, be tailored individually, take the patient's perspective into account, and may vary with the course of the patient's disease and co-morbidities. Assessment should include process variables. This report is a step towards greater conformity in the field of self-management. To enhance clarity regarding effectiveness, future studies should clearly describe their intervention, be properly designed and powered, and include outcomes that focus more on the acquisition and practice of new skills. In this way more evidence and a better comprehension on self-management programmes will be obtained, and more specific formulation of guidelines on self-management made possible.
自我管理在慢性阻塞性肺疾病(COPD)管理中变得越来越重要。然而,对于涉及的过程、自我管理的价值应如何确定以及研究重点等问题,仍存在混淆。为了更深入地了解和认同 COPD 自我管理计划、结果和未来方向的内容,一组对此感兴趣的研究人员和医生召开了一次研讨会。本文总结了他们的初步发现。自我管理计划旨在进行结构行为改变,以维持计划完成后的治疗效果。这些计划应包括旨在实现行为改变的技术,应根据个人情况量身定制,考虑到患者的观点,并可能因患者疾病的发展和合并症而异。评估应包括过程变量。本报告是朝着自我管理领域更加统一迈出的一步。为了更清楚地了解有效性,未来的研究应清楚地描述其干预措施,进行适当的设计和赋权,并包括更多关注新技能获取和实践的结果。通过这种方式,可以获得更多关于自我管理计划的证据和更好的理解,并有可能更具体地制定自我管理指南。