女性类风湿关节炎早期从症状出现到确诊期间寻求帮助的经历
Women's accounts of help-seeking in early rheumatoid arthritis from symptom onset to diagnosis.
作者信息
Townsend Anne, Backman Catherine L, Adam Paul, Li Linda C
机构信息
Arthritis Research Centre of Canada, Richmond, Vancouver, Canada, BC V6X 2C7 Department of Occupational Science & Occupational Therapy, University of British Columbia, Vancouver, Canada, BC V6T 2B5
Arthritis Research Centre of Canada, Richmond, Vancouver, Canada, BC V6X 2C7 Department of Occupational Science & Occupational Therapy, University of British Columbia, Vancouver, Canada, BC V6T 2B5.
出版信息
Chronic Illn. 2014 Dec;10(4):259-72. doi: 10.1177/1742395314520769. Epub 2014 Feb 24.
BACKGROUND
As interest in gender and health grows, the notion that women are more likely than men to consult doctors is increasingly undermined as more complex understandings of help seeking and gender emerge. While men's reluctance to seek help is associated with practices of masculinities, there has been less consideration of women's help-seeking practices. Rheumatoid arthritis (RA) is a chronic disease that predominantly affects women and requires prompt treatment but considerable patient-based delays persist along the care pathway. This paper examines women's accounts of help seeking in early RA from symptom onset to diagnosis.
METHODS
We conducted in-depth interviews with 37 women with RA <12 months in Canada. Analysis was based on a constant comparison, thematic approach informed by narrative analysis.
RESULTS
The women's accounts featured masculine practices associated with men's help-seeking. The women presented such behaviours as relational, e.g. rooted in family socialisation and a determination to maintain roles and 'normal' life.
DISCUSSION
Our findings raise questions about how far notions of gender operate to differentiate men and women's help seeking and may indicate more similarities than differences. Recognising this has implications for policy and practice initiatives for both men and women.
背景
随着对性别与健康的关注日益增加，随着对求助行为和性别的理解日益复杂，女性比男性更倾向于咨询医生这一观念越来越受到质疑。虽然男性不愿寻求帮助与男性气质的表现有关，但对女性的求助行为却较少有人关注。类风湿性关节炎（RA）是一种主要影响女性的慢性疾病，需要及时治疗，但在整个护理过程中，基于患者的延误情况仍然相当严重。本文探讨了女性在类风湿性关节炎早期从症状出现到确诊期间的求助经历。
方法
我们对加拿大37名患类风湿性关节炎时间少于12个月的女性进行了深入访谈。分析基于持续比较和以叙事分析为依据的主题方法。
结果
女性的叙述体现出与男性求助行为相关的男性气质表现。这些女性展现出诸如与人际关系有关的行为，例如这些行为源于家庭社会化以及她们维持角色和“正常”生活状态的决心。
讨论
我们的研究结果引发了关于性别观念在区分男性和女性求助行为方面作用程度的问题，可能表明两者之间相似之处多于差异。认识到这一点对针对男性和女性的政策及实践举措具有启示意义。
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