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为患有神经认知晚期效应的儿童癌症幸存者提供支持:一种护理模式。

Supporting pediatric cancer survivors with neurocognitive late effects: a model of care.

作者信息

Northman Lisa, Ross Sarah, Morris Marybeth, Tarquini Sarah

机构信息

Dana-Farber Cancer Institute, Boston, MA, USA

Dana-Farber Cancer Institute, Boston, MA, USA.

出版信息

J Pediatr Oncol Nurs. 2015 May-Jun;32(3):134-42. doi: 10.1177/1043454214554012. Epub 2014 Nov 21.

Abstract

Educational difficulties are common for childhood survivors of central nervous system (CNS) cancers. Children who have been treated for brain tumors and those who have received treatments involving the CNS are at increased risk of developing neurocognitive late effects including difficulties with attention, executive functioning, speed of processing, and academic functioning. These children are also at risk for difficulties with social functioning and social isolation. This hospital's School Liaison Program (SLP) provides ongoing psychoeducation, advocacy, and consultation services for parents, schools, and medical staff to address the educational needs associated with the late effects of treatment for pediatric CNS-involved patients. This article provides an overview of the SLP model of care and discusses parent-perceived quality and program effectiveness. In general, parents attributed SLP involvement to improved academic performance, home-school communication, and school-level understanding of unique student cognitive profiles and learning needs.

摘要

对于中枢神经系统(CNS)癌症的儿童幸存者来说,教育困难很常见。接受过脑肿瘤治疗的儿童以及接受过涉及中枢神经系统治疗的儿童,出现神经认知迟发效应的风险增加,包括注意力、执行功能、处理速度和学业功能方面的困难。这些儿童还面临社交功能障碍和社交孤立的风险。该医院的学校联络项目(SLP)为家长、学校和医务人员提供持续的心理教育、宣传和咨询服务,以满足与儿科中枢神经系统受累患者治疗迟发效应相关的教育需求。本文概述了SLP护理模式,并讨论了家长感知的质量和项目效果。总体而言,家长将SLP的参与归功于学业成绩的提高、家校沟通以及学校对学生独特认知特征和学习需求的了解。

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