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类风湿关节炎女性的孕产选择决策辅助工具可增加知识并减少决策冲突:一项随机对照试验。

The motherhood choices decision aid for women with rheumatoid arthritis increases knowledge and reduces decisional conflict: a randomized controlled trial.

作者信息

Meade T, Dowswell E, Manolios N, Sharpe L

机构信息

School of Social Sciences and Psychology, Western Sydney University, PO BOX 1797, Penrith, NSW, 2751, Australia.

Western Clinical School, Faculty of Medicine, The University of Sydney, Sydney, NSW, 2006, Australia.

出版信息

BMC Musculoskelet Disord. 2015 Sep 22;16:260. doi: 10.1186/s12891-015-0713-0.

Abstract

BACKGROUND

For many women with Rheumatoid Arthritis (RA) motherhood decisions are complicated by their condition and complex pharmacological treatments. Decisions about having children or expanding their family require relevant knowledge and consultation with their family and physician as conception and pregnancy has to be managed within the RA context. Relevant information is not readily available to women with RA. Therefore a randomized controlled study was conducted to evaluate the effectiveness of a new motherhood decision aid (DA) developed specifically for women with RA.

METHODS

One hundred and forty-four women were randomly allocated to either an intervention or control group. All women completed a battery of questionnaires at pre-intervention, including, the Pregnancy in Rheumatoid Arthritis Questionnaire (PiRAQ), the Decisional Conflict Scale (DCS), the Hospital Anxiety and Depression Scale (HADS), and the Arthritis Self-Efficacy Scale (ASES), and provided basic demographic information. Women in the DA group were sent an electronic version of the DA, and completed the battery of questionnaires for a second time post-intervention.

RESULTS

Women who received the DA had a 13 % increase in relevant knowledge (PiRAQ) scores and a 15 % decrease in scores on the decisional conflict (DCS), compared to the control group (1 %, 2 % respectively). No adverse psychological effects were detected as evident in unchanged levels of depression and anxiety symptoms.

CONCLUSIONS

The findings of this study suggest that this DA may be an effective tool in assisting women with RA when contemplating having children or more children.

TRIAL REGISTRATION

Australian New Zealand Clinical Trials Registry, http://www.anzctr.org.au/ , ACTRN12615000523505.

摘要

背景

对于许多患有类风湿性关节炎(RA)的女性来说,生育决策因病情和复杂的药物治疗而变得复杂。关于生育或扩大家庭的决策需要相关知识,并与家人和医生进行咨询,因为受孕和怀孕必须在类风湿性关节炎的背景下进行管理。患有类风湿性关节炎的女性无法轻易获得相关信息。因此,开展了一项随机对照研究,以评估专门为患有类风湿性关节炎的女性开发的新型生育决策辅助工具(DA)的有效性。

方法

144名女性被随机分配到干预组或对照组。所有女性在干预前完成了一系列问卷,包括类风湿性关节炎妊娠问卷(PiRAQ)、决策冲突量表(DCS)、医院焦虑抑郁量表(HADS)和关节炎自我效能量表(ASES),并提供了基本人口统计学信息。DA组的女性收到了DA的电子版,并在干预后再次完成了一系列问卷。

结果

与对照组(分别为1%、2%)相比,接受DA的女性相关知识(PiRAQ)得分提高了13%,决策冲突(DCS)得分降低了15%。未检测到明显的不良心理影响,抑郁和焦虑症状水平未发生变化。

结论

本研究结果表明,这种DA可能是协助患有类风湿性关节炎的女性考虑生育或生育更多子女时的有效工具。

试验注册

澳大利亚新西兰临床试验注册中心,http://www.anzctr.org.au/ ,ACTRN12615000523505。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6093/4579637/337bd843ac10/12891_2015_713_Fig1_HTML.jpg

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