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多发性硬化症患者中社会支持与疲劳症状的关系

Social Support in Relation to Fatigue Symptoms Among Patients with Multiple Sclerosis.

作者信息

Aghaei Naiereh, Karbandi Soheila, Gorji Mohammad Ali Heidari, Golkhatmi Maryam Bidgoli, Alizadeh Batul

机构信息

Department of Nursing and Midwifery, Mazandaran University of Medical Sciences, Sari, Iran.

Department of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran.

出版信息

Indian J Palliat Care. 2016 Apr-Jun;22(2):163-7. doi: 10.4103/0973-1075.179610.

Abstract

BACKGROUND AND AIM

The psychological changes and physiological limitations during multiple sclerosis (MS) disease diminish the social relations. Consequently, losing social supports leads to more physical and psychological complications such as fatigue syndromes. Therefore, this study aimed to investigate the relationship of social support and fatigue syndromes in MS patients.

METHODS

This study was a descriptive-analytic which randomly selected 46 patients with MS. The patients evaluated through demographic information, standard modified social support scale, fatigue severity scale, modified fatigue impact scale, and fatigue descriptive scale. Gathered data analyzed using descriptive and inferential statistical Pearson's correlation coefficient.

RESULTS

Mean score for variables were as following: Fatigue severity 4/3 ± 1/6, perceived fatigue 34/6 ± 19/5, quality of fatigue 62 ± 3/9, and social support 65/6 ± 23/1, respectively. According to the Pearson statistical test, there was signification association between social support with fatigue severity (P = 0.002 and r = -0.474), fatigue perception (P = 0.001 and = -0.478), and fatigue perception sub-scales, i.e. physical (P = 0.005, r = -0.432), cognitive (P = 0.003, r = -0.0457), and psychosocial (P = 0.009, r = -0.341), respectively. However, there was not significant relationship between social support and fatigue quality (P = 0.59).

CONCLUSION

According to the results of current study, all aspects of social support can impact fatigue symptoms in MS patients. Therefore, it is suggested to develop educational programs for caregivers of patients to improve the mental and physical quality of life of patients.

摘要

背景与目的

多发性硬化症(MS)病程中的心理变化和生理限制会削弱社会关系。因此,失去社会支持会导致更多身体和心理并发症,如疲劳综合征。所以,本研究旨在调查MS患者社会支持与疲劳综合征之间的关系。

方法

本研究为描述性分析研究,随机选取46例MS患者。通过人口统计学信息、标准改良社会支持量表、疲劳严重程度量表、改良疲劳影响量表和疲劳描述量表对患者进行评估。收集的数据采用描述性和推断性统计Pearson相关系数进行分析。

结果

各变量的平均得分如下:疲劳严重程度为4.3±1.6,感知疲劳为34.6±19.5,疲劳质量为62±3.9,社会支持为65.6±23.1。根据Pearson统计检验,社会支持与疲劳严重程度(P = 0.002,r = -0.474)、疲劳感知(P = 0.001,r = -0.478)以及疲劳感知子量表,即身体方面(P = 0.005,r = -0.432)、认知方面(P = 0.003,r = -0.457)和心理社会方面(P = 0.009,r = -0.341)之间分别存在显著关联。然而,社会支持与疲劳质量之间无显著关系(P = 0.59)。

结论

根据本研究结果,社会支持的各个方面均可影响MS患者的疲劳症状。因此建议为患者的护理人员制定教育计划,以提高患者的身心健康生活质量。

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