Division of Infant, Child and Adolescent Psychiatry, Zuckerberg San Francisco General Hospital, University of California, San Francisco, San Francisco, CA, United States.
Department of Psychiatry, Weill Institute of Neurosciences, University of California, San Francisco, San Francisco, CA, United States.
JMIR Mhealth Uhealth. 2019 Apr 5;7(4):e10904. doi: 10.2196/10904.
Mental health and substance use disorders are highly prevalent in justice-involved youth, yet only 8% of court-involved, nonincarcerated (CINI) youth in need of treatment receive it. Dual diagnosis (co-occurring psychiatric and substance use disorders) in justice-involved youth is highly predictive of recidivism. Identifying novel approaches, such as the use of mobile health (mHealth) technologies, to close this gap between need and receipt of behavioral health treatment for the CINI population could potentially offset rates of reoffending into adulthood. Text-messaging (short message service, SMS) interventions have demonstrated efficacy in improving treatment adherence and other associated outcomes in other vulnerable youth populations, but development and testing of mHealth interventions to improve behavioral health treatment rates and outcomes for CINI youth are lacking.
This study aimed to collect qualitative data from key stakeholders to inform the development of a theoretically grounded, family-based text-messaging (SMS) intervention targeting CINI youth's behavioral health treatment engagement; additionally, the aim was to conduct end-user testing over 6 months with CINI youth and caregivers to determine intervention feasibility and acceptability.
CINI youth and caregivers were referred from a California-based Juvenile Probation Department and community-based provider organizations providing services for justice-involved youth. Eligibility criteria included the following: being a justice-involved youth or a caregiver of a justice-involved youth, English speaking, youth aged 13 to 17 years old and either referred to or currently attending mental health or substance use treatment, and youth and caregiver have access to a cell phone with text-messaging capability.
Overall, 28 individuals participated in focus groups and interviews-8 youth, 5 caregivers, and 15 juvenile justice (JJ) personnel. Three major themes emerged: (1) texting among JJ personnel and CINI youth and caregivers in their caseload is common but not systematic, (2) stigma and privacy are perceived as barriers to texting youth about behavioral health treatment appointments, and (3) messages should be short, simple, relatable, positive, and personalized. In total, 9 participants (7 youth and 2 caregivers) participated in end-user testing and rated the intervention as useful, helpful, and supportive.
Text messaging (SMS) is an acceptable and feasible means of reminding CINI youth to attend behavioral health treatment appointments. Future implementation challenges include making text messaging (SMS) personalized and tailored but not resource intensive (eg, requiring one-to-one, 24/7 human contact) and identifying which systems will deliver and sustain the intervention. Text messaging (SMS) among justice personnel, youth, and their caregivers is already widespread, but lack of clear guidelines about privacy, confidentiality, and information sharing poses ethical conundrums. Future hybrid-type research designs that explore the efficacy of the intervention while also studying ethical, system, and policy-level factors associated with using digital health interventions to improve CINI youth outcomes is a key next step.
心理健康和物质使用障碍在涉及司法的青少年中非常普遍,但只有 8%有治疗需求的非监禁(CINI)青少年接受了治疗。司法涉案青少年的双重诊断(同时存在精神疾病和物质使用障碍)与累犯高度相关。确定新的方法,例如使用移动健康(mHealth)技术,来缩小 CINI 人群中行为健康治疗需求与接受治疗之间的差距,可能会降低成年后再次犯罪的比率。短信(短消息服务,SMS)干预措施已证明在改善其他弱势群体青少年的治疗依从性和其他相关结果方面具有功效,但为 CINI 青少年开发和测试改善行为健康治疗率和结果的 mHealth 干预措施仍有所欠缺。
本研究旨在从利益相关者那里收集定性数据,为一项以家庭为基础的、针对 CINI 青少年行为健康治疗参与的短信(SMS)干预措施的制定提供信息;此外,还计划对 CINI 青少年及其照顾者进行 6 个月的终端用户测试,以确定干预措施的可行性和可接受性。
从加利福尼亚州的少年缓刑部门和为司法涉案青少年提供服务的社区服务提供商那里转介 CINI 青少年及其照顾者。纳入标准包括:是司法涉案青少年或司法涉案青少年的照顾者,会说英语,年龄在 13 至 17 岁之间,要么是接受过或正在接受心理健康或物质使用治疗的转介青少年,要么是正在接受治疗,并且青少年及其照顾者都有一部可以收发短信的手机。
共有 28 人参加了焦点小组和访谈,包括 8 名青少年、5 名照顾者和 15 名少年司法(JJ)人员。出现了三个主要主题:(1)JJ 人员与 CINI 青少年及其照顾者在其案件中经常发短信,但并非系统地进行,(2)对青少年发关于行为健康治疗预约的短信存在污名化和隐私方面的障碍,(3)短信应简短、简单、相关、积极且个性化。共有 9 名参与者(7 名青少年和 2 名照顾者)参加了终端用户测试,他们认为该干预措施有用、有帮助和支持。
短信(SMS)是提醒 CINI 青少年参加行为健康治疗预约的一种可接受且可行的方式。未来的实施挑战包括使短信(SMS)个性化和定制化但不耗费资源(例如,需要一对一、24/7 的人工联系),以及确定将使用哪种系统来提供和维持干预措施。司法人员、青少年及其照顾者之间的短信(SMS)已经很普遍,但关于隐私、保密性和信息共享的明确准则缺乏,这引发了伦理难题。未来的混合研究设计,在探索干预措施的效果的同时,研究与使用数字健康干预措施改善 CINI 青少年结果相关的伦理、系统和政策层面的因素,是一个关键的下一步。