儿童和青少年癌症患者的教育机会和体验：系统评价研究方案。
Access to and experience of education for children and adolescents with cancer: a scoping review protocol.
机构信息
School of Health Sciences, University of Surrey, Stag Hill, Guildford, GU2 7XH, Surrey, UK.
Louis Dundas Centre for Children's Palliative Care, UCL Great Ormond Street Institute of Child Health, 30 Guilford Street, London, UK.
出版信息
Syst Rev. 2021 Jun 7;10(1):167. doi: 10.1186/s13643-021-01723-4.
BACKGROUND
Cancer diagnosis in childhood or adolescence impacts significantly on school attendance, experience and educational outcomes. While there is longstanding recognition in clinical practice that these effects span the whole illness trajectory and continue beyond treatment completion, further clarity is required on the specific barriers and facilitators to education during cancer treatment and beyond, as well as on the experiences of children and adolescents across the full range of education settings (hospital, home, virtual, original school of enrolment), in order to determine which interventions are successful in improving access and experience from their perspective. The aim of this review is to identify what is known from the existing literature about access to and experience of education for children and adolescents with cancer during and post treatment.
METHODS
We have planned a scoping literature review searching the following databases from inception onwards: MEDLINE (Ovid), Embase and Embase Classic, Web of Science Core Collection, Education Resources Index, Sociological Abstracts, APA PsycINFO, SCOPUS, CINAHL Plus, Emcare and The Cochrane Library. In addition, DARE, conference abstracts, key journals, and institutional websites will be searched. Arksey and O'Malley's six-step process will be followed, including a consultation exercise. Studies, reports and policies from any country providing care and treatment for children and adolescents with cancer published in English will be considered eligible for inclusion. Two reviewers will independently screen all citations, full-text articles and abstract data. A narrative summary of findings will be conducted. Data analysis will involve quantitative (e.g., frequencies) and qualitative (e.g., content and thematic analysis) methods.
DISCUSSION
This is a timely examination given the increased incidence of childhood cancer, more intensive treatment regimens and improved survival rates for childhood cancer. The inclusion of a substantive consultation exercise with families and professionals will provide an important opportunity to examine the scoping review outputs. Findings will assist the childhood cancer community in developing a comprehensive evidence-based understanding of a significant associated bio-psychosocial impact of cancer diagnosis and treatment and will form the first step towards developing effective interventions and policies to mitigate identified detrimental effects.
SYSTEMATIC REVIEW REGISTRATION
Open Science Framework (osf/io/yc4wt).
背景
儿童或青少年癌症的诊断会显著影响其上学、学习经历和教育成果。虽然临床实践中长期以来一直认识到这些影响贯穿整个疾病过程，并在治疗完成后仍在继续，但仍需要进一步明确在癌症治疗期间及之后教育方面的具体障碍和促进因素，以及在医院、家庭、虚拟、原入学学校等各种教育环境中儿童和青少年的经历，以确定从他们的角度来看，哪些干预措施可以成功提高入学机会和改善学习体验。本综述的目的是从现有文献中确定在癌症治疗期间和之后儿童和青少年获得和接受教育的情况。
方法
我们计划进行一项范围界定文献综述，从创建开始至今，在以下数据库中进行搜索：MEDLINE（Ovid）、Embase 和 Embase Classic、Web of Science 核心合集、教育资源索引、社会学文摘、APA PsycINFO、SCOPUS、CINAHL Plus、Emcare 和 The Cochrane Library。此外，还将搜索 DARE、会议摘要、主要期刊和机构网站。将遵循阿斯基和奥马利的六步流程，并进行咨询工作。来自为儿童和青少年癌症患者提供护理和治疗的任何国家的研究、报告和政策，只要以英文发表，均符合纳入条件。两名审查员将独立筛选所有引用、全文文章和摘要数据。将对研究结果进行叙述性总结。数据分析将涉及定量（例如，频率）和定性（例如，内容和主题分析）方法。
讨论
鉴于儿童癌症的发病率增加、更密集的治疗方案和儿童癌症的生存率提高，这是一次及时的检查。与家庭和专业人员进行实质性的咨询工作，将为检查范围综述结果提供重要机会。研究结果将有助于儿童癌症社区全面了解癌症诊断和治疗带来的重要生物心理社会影响，并将成为制定有效干预措施和政策以减轻已确定的不利影响的第一步。
系统评价注册
Open Science Framework（osf.io/yc4wt）。
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