Toh Hui Jin, Ballantyne Angela, Ong Serene Ai Kiang, Sankaran Chitra, Tay Hung Yong, Singh Malminderjit, Zaidi Raza, Chia Roland, Singh Sarabjeet, Samachittananda Swami, Shi You Guang, Tan Zhixia, Lysaght Tamra
Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore, Singapore.
Department of Primary Health Care and General Practice, University of Otago, Wellington, New Zealand.
Asian Bioeth Rev. 2021 Sep 6;13(4):473-483. doi: 10.1007/s41649-021-00180-4. eCollection 2021 Dec.
Precision medicine (PM) aims to revolutionise healthcare, but little is known about the role religion and spirituality might play in the ethical discourse about PM. This Perspective reports the outcomes of a knowledge exchange fora with religious authorities in Singapore about data sharing for PM. While the exchange did not identify any foundational religious objections to PM, ethical concerns were raised about the possibility for private industry to profiteer from social resources and the potential for genetic discrimination by private health insurers. According to religious authorities in Singapore, sharing PM data with private industry will require a clear public benefit and robust data governance that incorporates principles of transparency, accountability and oversight.
The online version contains supplementary material available at 10.1007/s41649-021-00180-4.
精准医学(PM)旨在彻底变革医疗保健,但对于宗教和灵性在有关精准医学的伦理讨论中可能发挥的作用,人们知之甚少。本观点报告了与新加坡宗教当局就精准医学数据共享举行的知识交流论坛的成果。虽然交流未发现宗教对精准医学有任何根本性反对意见,但有人对私营企业从社会资源中获利的可能性以及私营健康保险公司进行基因歧视的可能性提出了伦理担忧。据新加坡宗教当局称,与私营企业共享精准医学数据将需要明确的公共利益以及强大的数据治理,其中应纳入透明度、问责制和监督原则。
在线版本包含可在10.1007/s41649-021-00180-4获取的补充材料。