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“[我]不想只是机器上的一个齿轮”:自闭症和熟练就业的叙事。

"[I] don't wanna just be like a cog in the machine": Narratives of autism and skilled employment.

机构信息

Portland State University, USA.

Academic Autism Spectrum Partnership in Research and Education, USA.

出版信息

Autism. 2023 Jan;27(1):65-75. doi: 10.1177/13623613221080813. Epub 2022 Apr 1.

Abstract

Autistic people are less likely to be employed than the general population. Autistic people with skilled training (e.g. training for jobs in acting, plumbing, science, or social work) might be even less likely to get a good job in their field. Little is known about the experiences of autistic people in skilled employment or what employment success means to them. We interviewed 45 autistic people with skilled training in a wide range of fields, 11 job supervisors, and 8 topic experts. We asked them about their experiences, what they felt helped them to be successful at work, and what employment success means to them. Participants talked about the high stakes of disclosure, taking unconventional pathways to careers, disconnects with service and support systems, mental health challenges from trauma and burnout, the autistic advantages in the workplace, and complex dimensions of discrimination. Participants said success meant opportunities for growth, good work/life balance, financial independence, sense of community, and feeling valued, accepted, and like their work had meaning. Things that helped them be successful included flexible, accepting workplaces, supportive and respectful supervisors, and direct communication. What we learned suggests that an individualized, wholistic approach to autism employment intervention that considers both employers and employees and employee mental health could be useful. We also recommend more research into disclosure and destigmatizing disability at work.

摘要

自闭症患者的就业率低于一般人群。接受过技能培训的自闭症患者(例如,接受过演艺、管道、科学或社会工作方面培训的患者)可能更难在其领域找到一份好工作。目前,人们对自闭症患者在技能型就业方面的经历以及就业成功对他们意味着什么知之甚少。我们采访了 45 名在不同领域接受过技能培训的自闭症患者、11 名工作主管和 8 名主题专家。我们询问了他们的经历、他们认为有助于工作成功的因素,以及就业成功对他们意味着什么。参与者谈到了披露的高风险、走非传统职业道路、与服务和支持系统脱节、因创伤和倦怠导致的心理健康挑战、工作场所中的自闭症优势,以及歧视的复杂维度。参与者表示,成功意味着有机会成长、良好的工作/生活平衡、经济独立、社区感以及感到被重视、被接受,并且他们的工作有意义。帮助他们成功的因素包括灵活、包容的工作场所、支持和尊重他们的主管以及直接沟通。我们的研究结果表明,一种考虑雇主和员工以及员工心理健康的个性化、整体的自闭症就业干预方法可能会很有用。我们还建议对工作中的披露和消除残疾污名进行更多研究。

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