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“我生活在极端之中”:一项关于成年自闭症患者惯性休息和运动体验的定性研究。

'I live in extremes': A qualitative investigation of Autistic adults' experiences of inertial rest and motion.

机构信息

Macquarie School of Education, Macquarie University, Sydney, Australia.

UCL Institute of Education, University College London, UK.

出版信息

Autism. 2024 May;28(5):1305-1315. doi: 10.1177/13623613231198916. Epub 2023 Sep 30.

Abstract

'Autistic inertia' is a term used by Autistic people to refer to difficulties with starting and stopping tasks. However, there has not been much research on Autistic inertia. The research that is available on Autistic inertia has mostly focused on the negative aspects of inertia, rather than on the possible benefits of needing to continue tasks. In this research, we wanted to understand more about Autistic people's experiences of inertia and to work out what things might influence these experiences. Autistic and non-Autistic researchers spoke in-depth to 24 Autistic adults. We identified four key ideas from people's responses. Autistic people spoke about their inertial 'difficulties moving from one state to another' and described how these challenges affected them 'every single day'. While they experienced inertia as 'the single most disabling part of being Autistic', people also described the positive aspects of inertia, including the joy they felt when completely immersed in a task. Our Autistic participants emphasised that inertial difficulties are experienced by everyone, the intensity of these task-switching difficulties might be especially challenging for Autistic people. Our findings also reveal how Autistic inertia can be seen both as a disabling and as an enabling condition.

摘要

“自闭症惯性”是自闭症患者用来描述启动和停止任务困难的术语。然而,目前关于自闭症惯性的研究并不多。现有的关于自闭症惯性的研究大多集中在惯性的负面方面,而不是需要继续任务的可能好处上。在这项研究中,我们希望更多地了解自闭症患者对惯性的体验,并找出可能影响这些体验的因素。自闭症和非自闭症研究人员与 24 名自闭症成年人进行了深入交谈。我们从人们的回答中确定了四个关键想法。自闭症患者谈到了他们惯性的“难以从一种状态过渡到另一种状态”,并描述了这些挑战如何影响他们的“每一天”。虽然他们将惯性视为“自闭症最具致残性的部分”,但人们也描述了惯性的积极方面,包括他们在完全沉浸于一项任务时所感受到的快乐。我们的自闭症参与者强调,惯性困难是每个人都会经历的,而对于自闭症患者来说,这种任务转换困难的强度可能尤其具有挑战性。我们的研究结果还揭示了自闭症惯性如何既被视为一种致残条件,又被视为一种使能条件。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c273/11067417/d37d091310e0/10.1177_13623613231198916-fig1.jpg

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