University of Michigan-Flint, USA.
University of Wisconsin-Whitewater, USA.
Autism. 2024 Jul;28(7):1772-1784. doi: 10.1177/13623613231206420. Epub 2023 Nov 8.
Research consistently documents the poor postsecondary outcomes of autistic individuals. It is important to identify supports that help autistic individuals get and keep jobs to improve postsecondary outcomes. Autism diagnosis disclosure at work may serve as a support (e.g., receiving accommodations) or as a barrier (e.g., discrimination) to getting and keeping employment, but little is known about the lived experiences of autistic individuals on diagnosis disclosure at work. To better understand why individuals on the spectrum choose to pursue disclosure or choose not to disclose at work, how they disclose, and the consequences of that disclosure, a state-of-the-art literature review was conducted. Ten studies met the final inclusion criteria and were synthesized to provide guidance to autistic individuals, families, and professionals who support their transition to employment. Findings from the review indicate that diagnosis disclosure is a highly complex decision. Across reviewed studies, participants chose to pursue disclosure for specific reasons, including access to accommodations or support, increase understanding, and advocate for self or others. Autistic individuals participating across reviewed studies shared they chose not to disclose primarily due to fears of discrimination and experience of stigma. Both the hopes (access to accommodations and supports) and fears (bullying and discrimination) were validated in the experienced consequences of disclosure. More research is needed on the contextual experiences of how individuals on the spectrum disclose their diagnosis at work.
研究不断证明自闭症患者在高等教育后的结果较差。确定有助于自闭症患者获得和保持工作的支持对于改善高等教育结果至关重要。在工作中披露自闭症诊断可以作为获得和保持就业的支持(例如获得适应措施)或障碍(例如歧视),但对于自闭症患者在工作中披露诊断的实际经历知之甚少。为了更好地了解为什么自闭症谱系患者选择披露或不披露诊断,他们如何披露,以及披露的后果,进行了一项最先进的文献综述。符合最终纳入标准的十项研究进行了综合,为那些支持他们过渡到就业的自闭症患者、家庭和专业人士提供指导。审查结果表明,诊断披露是一个非常复杂的决定。在回顾的研究中,参与者出于特定原因选择披露诊断,包括获得适应措施或支持、增加理解以及为自己或他人辩护。参与回顾研究的自闭症患者表示,他们主要由于担心歧视和受到污名化的影响而选择不披露诊断。在披露诊断的后果中验证了希望(获得适应措施和支持)和恐惧(欺凌和歧视)。需要更多的研究来了解自闭症谱系患者在工作中披露诊断的具体情况。