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一项旨在提高大多伴有智力残疾的自闭症个体在庇护性工作环境中安置率的个人支持项目:意大利社区服务中的一项前瞻性观察性病例系列研究。

An individual-supported program to enhance placement in a sheltered work environment of autistic individuals mostly with intellectual disability: a prospective observational case series in an Italian community service.

作者信息

Maggio Roberta, Turriziani Laura, Campestre Caterina, Di Cara Marcella, Tripodi Emanuela, Impallomeni Caterina, Quartarone Angelo, Passantino Claudio, Cucinotta Francesca

机构信息

Center for Autism "Dopo di noi", Barcellona Pozzo di Gotto, Messina, Italy.

Unit of Child Neurology and Psychiatry, Department of Human Pathology of the Adult and Developmental Age, "Gaetano Barresi" University of Messina, Messina, Italy.

出版信息

Front Psychiatry. 2023 Nov 2;14:1225236. doi: 10.3389/fpsyt.2023.1225236. eCollection 2023.

Abstract

INTRODUCTION

Autism spectrum disorder is a lifelong neurodevelopmental disorder. The profile of functioning in autistic people is very heterogeneous, and it is necessary to take into account individual characteristics to better support integration in the workplace. However, unemployment rates are higher for autistic people than for other types of disabilities. We present a prospective case series to explore the feasibility and efficacy of an individual-supported program to enhance placement in a sheltered work environment delivered by an Italian community day care center.

METHODS

Autistic subjects, aged from 12 to 31 years, participated in an individual-supported program regarding employment in sheltered art workshops, integrated into the regular activity of a semi-residential center three times a week for 1 year. Their feasibility retention rate and time worked per session were registered; moreover, working methods efficacy and self-organization improvement were tracked by the Likert-based rating system. Secondary outcome measures span functional levels, challenge behaviors, and sensory problems.

RESULTS

All the individuals presented a good adaptation to the environment, with a significant increase in time worked per session. After 1 year, the intervention allowed an increase in tasks completed in an assigned complex job and an improvement in self-organization within the work schedule in a group of subjects consisting mainly of severe-to-moderate levels of autism severity (86.6%). Finally, we observed a significant increase in independent functioning areas of the TEACCH transitional assessment profile. Challenge behaviors and sensory problems were also recorded.

CONCLUSION

This case series supports the idea that individual-supported programs for placement in sheltered job environments delivered by community day care centers could be feasible and effective for ASD with higher levels of severity and co-occurring intellectual disability. Further targeted studies based on community models and accessible methods need to be planned to define the effectiveness of the intervention and promote improved practice at the community level with a better social impact.

摘要

引言

自闭症谱系障碍是一种终身神经发育障碍。自闭症患者的功能表现非常多样化,有必要考虑个体特征以更好地支持其融入职场。然而,自闭症患者的失业率高于其他类型的残疾人士。我们呈现一个前瞻性病例系列,以探讨由意大利社区日托中心提供的个人支持计划在庇护性工作环境中提高安置率的可行性和有效性。

方法

年龄在12至31岁之间的自闭症受试者参加了一项关于在庇护性艺术工作室就业的个人支持计划,该计划融入了一个半寄宿中心的常规活动,每周三次,为期1年。记录他们的可行性留存率和每次课程的工作时长;此外,通过基于李克特量表的评分系统跟踪工作方法的有效性和自我组织能力的提升。次要结果指标包括功能水平、挑战行为和感官问题。

结果

所有个体都对环境表现出良好的适应性,每次课程的工作时长显著增加。1年后,干预措施使一组主要为中重度自闭症严重程度(86.6%)的受试者在分配到的复杂工作中完成的任务有所增加,并且在工作时间表内的自我组织能力有所提高。最后,我们观察到TEACCH过渡评估概况的独立功能领域有显著增加。还记录了挑战行为和感官问题。

结论

这个病例系列支持这样一种观点,即由社区日托中心提供的用于安置在庇护性工作环境中的个人支持计划对于严重程度较高且伴有智力残疾的自闭症谱系障碍患者可能是可行且有效的。需要规划基于社区模式和可及方法的进一步针对性研究,以确定干预措施的有效性,并在社区层面促进改进实践,产生更好的社会影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3548/10651717/e50225ce85da/fpsyt-14-1225236-g0001.jpg

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