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小儿唇腭裂患者的治疗前景与担忧:一项横断面研究。

Treatment perspectives and concerns among pediatric cleft lip and palate patients: a cross-sectional study.

作者信息

Manohar Jeannie Rachel, Cherian Joe Mathew, Mathew Mebin George, Thomas Abi M

机构信息

Department of Pedodontics and Preventive Dentistry, Christian Dental College, Ludhiana, Punjab, 141008, India.

出版信息

BMC Oral Health. 2025 Aug 12;25(1):1323. doi: 10.1186/s12903-025-06693-w.

Abstract

BACKGROUND

Children with cleft lip and palate (CLP) often face physical and emotional challenges impacting their quality of life. This study aims to assess the treatment outlook and concerns of school-going CLP patients from the perspective of pediatric dentistry in a tertiary healthcare setting in North India.

METHODS

A cross-sectional, questionnaire-based study was conducted on 30 patients undergoing appliance therapy for CLP. The questionnaire, available in English and regional languages, included sections on general information, treatment, aesthetic, functional, and emotional aspects. Responses from children and their parents were analyzed, with chi-square tests used to evaluate associations between variables.

RESULTS

Among participants, 76.6% were referred to pediatric dentists by surgeons, and 66.7% of those aged over 12 years had been receiving dental treatment for more than three years (P = 0.031). Dissatisfaction with facial appearance was reported by 56.7% of participants, with significant speech dissatisfaction noted particularly among children under 12 years (66.7%, P = 0.020). Emotional and social challenges included 56.7% struggling with oral recitation at school, affecting 75% of adolescents (P = 0.098). Furthermore, 46.7% expressed reduced confidence with intraoral appliances, especially males (53.3%).

CONCLUSIONS

This study highlights the crucial role of pediatric dentists in the comprehensive care of children with CLP, emphasizing the need for personalized dental treatment and interdisciplinary collaboration. Addressing functional and emotional well-being is essential to improve overall outcomes and quality of life for these patients.

TRIAL REGISTRATION

Not applicable.

摘要

背景

唇腭裂(CLP)患儿常常面临影响其生活质量的身体和情感挑战。本研究旨在从印度北部一家三级医疗机构的儿童牙科角度评估学龄期CLP患者的治疗前景和担忧。

方法

对30名接受CLP矫治器治疗的患者进行了一项基于问卷的横断面研究。该问卷有英文和当地语言版本,包括一般信息、治疗、美学、功能和情感方面的内容。对儿童及其父母的回答进行了分析,采用卡方检验评估变量之间的关联。

结果

在参与者中,76.6%是由外科医生转诊至儿童牙医处的,12岁以上的参与者中有66.7%接受牙科治疗超过三年(P = 0.031)。56.7%的参与者表示对面部外观不满意,12岁以下儿童中对语音不满意的比例尤其显著(66.7%,P = 0.020)。情感和社交挑战包括56.7%的人在学校口头背诵方面存在困难,这影响了75%的青少年(P = 0.098)。此外,46.7%的人对口腔矫治器的信心下降,尤其是男性(53.3%)。

结论

本研究强调了儿童牙医在CLP患儿综合护理中的关键作用,强调了个性化牙科治疗和跨学科合作的必要性。解决功能和情感健康问题对于改善这些患者的总体治疗效果和生活质量至关重要。

试验注册

不适用。

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A systematic review of early speech interventions for children with cleft palate.
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The Role of the Pediatric Dentist in the Multidisciplinary Management of the Cleft Lip Palate Patient.
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Prevalence of cleft lip and palate and associated factors in Brazil's Midwest: a single-center study.
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Pedodontist's Role in Managing Speech Impairments Due to Structural Imperfections and Oral Habits: A Literature Review.
Int J Clin Pediatr Dent. 2020 Jan-Feb;13(1):85-90. doi: 10.5005/jp-journals-10005-1745.

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