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为患有恶性肿瘤的儿童开展有组织的医院/学校项目的新思路:实施中的问题

A novel idea for an organized hospital/school program for children with malignancies: issues in implementation.

作者信息

Kapelaki Urania, Fovakis Heraklis, Dimitriou Helen, Perdikogianni Chrissoula, Stiakaki Eftichia, Kalmanti Maria

机构信息

Department of Pediatric Hematology/Oncology, University Hospital of Heraklion, Crete, Greece.

出版信息

Pediatr Hematol Oncol. 2003 Mar;20(2):79-87. doi: 10.1080/0880010390158586.

Abstract

The aim of this pilot study was to provide children with cancer hospitalized at the Department of Pediatric Hematology-Oncology of the University Hospital of Heraklion, Crete, with an educational program based on the SIOP guidelines. This would help them to follow the school program during the days of absence due to treatment. The realization of the initial idea generated difficulties that had to be overcome to achieve the goals and caused several changes in the program. Children refused to attend a regular class in the appropriately designed playroom of the Department but were very keen on room-to-room teaching that was adjusted to their needs and wills. This method of teaching was very well accepted by the children. A workup was done with parents and health professionals to convince them of the necessity of such a program and persuade them to participate in the procedure by encouraging children to attend it. Several steps have been taken and others have been planned for the teachers to receive education concerning the special needs of these children after dismissal from the hospital as well as that of their siblings to help in the reentry procedure. An adjustment to the personal needs of the hospitalized children with cancer, especially in areas where the psychosocial resources are minor, has proved very helpful and effective for the reentry of these children to regular school and social life.

摘要

这项初步研究的目的是为在克里特岛伊拉克利翁大学医院儿科血液肿瘤学部门住院的癌症患儿提供一个基于国际儿科肿瘤学会(SIOP)指南的教育项目。这将帮助他们在因治疗而缺课期间跟上学校课程。最初想法的实施遇到了一些困难,必须克服这些困难才能实现目标,这也导致了项目的一些变化。孩子们拒绝在该部门设计合理的游戏室里参加常规课程,但非常热衷于根据他们的需求和意愿进行的逐间病房教学。这种教学方法很受孩子们欢迎。与家长和健康专业人员进行了详细评估,以让他们相信这样一个项目的必要性,并通过鼓励孩子们参加来劝说他们参与这个过程。已经采取了几个步骤,并且还计划了其他步骤,以便让教师接受关于这些孩子出院后的特殊需求以及他们兄弟姐妹的特殊需求的教育,以帮助他们重新融入学校。事实证明,根据住院癌症患儿的个人需求进行调整,特别是在心理社会资源较少的领域,对这些孩子重新融入正规学校和社会生活非常有帮助且有效。

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