De Judicibus Margaret A, McCabe Marita P
School of Psychology, Deakin University, Melbourne, Australia.
Adolescence. 2004 Fall;39(155):551-69.
Thirty-one parents with multiple sclerosis (MS) participated in a study to investigate the adjustment of their children, 24 boys and 24 girls aged 4 to 16 years. The majority of parents believed that their illness had an effect on their children. The perception of parents regarding their children's problems in the areas of emotions, concentration, behavior, or social interactions indicated that the children were at three times greater risk than the general community of developing psychological problems. In contrast, actual symptom scores reported by parents revealed that, although these children were at greater risk than the general community of developing peer problems, little difference was found on hyperactivity, emotional symptoms, conduct problems, or total difficulties. Parental negative affect predicted both parental reports of peer problems and perceptions that the parents' illness had an effect on their children. Parental relationship satisfaction and family income did not predict parental reports of children's level of adjustment. These results indicate that children of parents with MS demonstrate more difficulties in how they relate to others, the distress they experience, and how they manage their lives, rather than revealing higher levels of symptoms. Since the data were based on parental reports of their children's problems, the results may also be due to negative affect among the parents.
31位患有多发性硬化症(MS)的家长参与了一项研究,以调查他们4至16岁的子女(24名男孩和24名女孩)的适应情况。大多数家长认为自己的疾病对孩子有影响。家长对孩子在情绪、注意力、行为或社交互动方面问题的认知表明,这些孩子出现心理问题的风险是普通人群的三倍。相比之下,家长报告的实际症状得分显示,尽管这些孩子出现同伴问题的风险高于普通人群,但在多动、情绪症状、行为问题或总体困难方面几乎没有差异。家长的消极情绪既预示着家长对同伴问题的报告,也预示着家长认为自己的疾病对孩子有影响的认知。家长关系满意度和家庭收入并不能预测家长对孩子适应水平的报告。这些结果表明,患有MS的家长的孩子在与他人相处、所经历的痛苦以及生活管理方面表现出更多困难,而非表现出更高水平的症状。由于数据基于家长对孩子问题的报告,结果也可能归因于家长的消极情绪。