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患者对慢性病主动自我管理的认知障碍。

Patients' perceived barriers to active self-management of chronic conditions.

作者信息

Jerant Anthony F, von Friederichs-Fitzwater Marlene M, Moore Monique

机构信息

Department of Family and Community Medicine, University of California Davis, School of Medicine, 4860 Y Street, Suite 2300, Sacramento, CA 95818, USA.

出版信息

Patient Educ Couns. 2005 Jun;57(3):300-7. doi: 10.1016/j.pec.2004.08.004.

Abstract

Few studies have elicited barriers to patient self-management of chronic conditions, and only one concerned people with two or more conditions. To inform development of Homing in on Health (HioH), a home delivery variant of the Chronic Disease Self-Management Program (CDSMP), we conducted 10 focus groups involving 54 chronically ill people, 46 (85%) of whom had multiple conditions. The goals were to elicit perceived barriers to active self-management and to accessing self-management support resources. Depression, weight problems, difficulty exercising, fatigue, poor physician communication, low family support, pain, and financial problems were the most frequently noted barriers to active self-management. The most common barriers to accessing self-management support resources were lack of awareness, physical symptoms, transportation problems, and cost/lack of insurance coverage. Our findings provided initial support for the Homing in on Health approach, since many of the barriers identified may be more amenable to home-based intervention than to centralized, facility-based programs.

摘要

很少有研究揭示慢性病患者自我管理的障碍,而且只有一项研究涉及患有两种或更多种疾病的人群。为了为“聚焦健康”(HioH)提供信息,这是慢性病自我管理项目(CDSMP)的一种上门服务变体,我们开展了10个焦点小组,涉及54名慢性病患者,其中46人(85%)患有多种疾病。目标是找出主动自我管理和获取自我管理支持资源方面的感知障碍。抑郁、体重问题、运动困难、疲劳、与医生沟通不畅、家庭支持不足、疼痛和经济问题是主动自我管理中最常提到的障碍。获取自我管理支持资源最常见的障碍是缺乏认知、身体症状、交通问题以及费用/缺乏保险覆盖。我们的研究结果为“聚焦健康”方法提供了初步支持,因为所确定的许多障碍可能比集中式的、基于机构的项目更适合家庭干预。

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