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患者参与宗教和精神活动:以SpREUK-P 1.1问卷作为生活质量研究工具的验证性结果。

Engagement of patients in religious and spiritual practices: confirmatory results with the SpREUK-P 1.1 questionnaire as a tool of quality of life research.

作者信息

Büssing Arndt, Matthiessen Peter F, Ostermann Thomas

机构信息

Department of Medical Theory and Complementary Medicine, University Witten/Herdecke, Gerhard-Kienle-Weg 4, 58313 Herdecke, Germany.

出版信息

Health Qual Life Outcomes. 2005 Sep 6;3:53. doi: 10.1186/1477-7525-3-53.

Abstract

BACKGROUND

Quality of life is a multidimensional construct composed of functional, physical, emotional, social and spiritual well-being. In order to examine how patients with severe diseases view the impact of spirituality and religiosity on their health and how they cope with illness, we have developed the SpREUK questionnaire. We deliberately avoided the intermingling of attitudes, convictions and practices, and thus addressed the distinct forms and frequencies of spiritual/religious practices in an additional manual, the SpREUK-P questionnaire.

METHODS

The SpREUK-P was designed to differentiate spiritual, religious, existentialistic and philosophical practices. It was tested in a sample of 354 German subjects (71% women; 49.0 +/- 12.5 years). Half of them were healthy controls, while among the patients cancer was diagnosed in 54%, multiple sclerosis in 22%, and other chronic diseases in 23%. Reliability and factor analysis of the inventory were performed according to the standard procedures.

RESULTS

We confirmed the structure and consistency of the previously described 18-item SpREUK-P manual and improved the quality of the current construct by adding several new items. The new 25-item SpREUK-P 1.1 (Cronbach's alpha = 0.8517) has the following scales: (1) conventional religious practice (CRP), (2) existentialistic practice (ExP), (3) unconventional spiritual practice (USP), (4) nature/environment-oriented practice (NoP), and (5) humanistic practice (HuP). Among the tested individuals, the highest engagement scores were found for HuP and NoP, while the lowest were found for the USP. Women had significantly higher scores for ExP than male patients. With respect to age, the engagement in CRP increases with increasing age, while the engagement in a HuP decreased. Individuals with a Christian orientation and with a religious and spiritual attitude had the highest engagement scores for CRP, while the engagement in an USP was high with respect to a spiritual attitude. Variance analyses confirmed that the SpR attitude and religious affiliation are the main relevant covariates for CRP and ExP, while for the USP the SpR attitude and the educational level are of significance, but not religious affiliation. Patients with multiple sclerosis overall had the lowest engagement scores for all five forms of SpR practice, while it is remarkable that cancer patients had lower scores for HuP and USP than healthy subjects.

CONCLUSION

The current re-evaluation of the SpREUK-P questionnaire (Version 1.1) indicates that it is a reliable, valid measure of five distinct forms of spiritual, religious and philosophical practice that may be especially useful for assessing the role of spirituality and religiosity in health related research. An advantage of our instruments is the clear-cut differentiation between convictions and attitudes on the one hand, and the expression of these attitudes in a concrete engagement on the other hand.

摘要

背景

生活质量是一个多维概念,由功能、身体、情感、社会和精神幸福感组成。为了研究重症患者如何看待灵性和宗教信仰对其健康的影响以及他们如何应对疾病,我们开发了SpREUK问卷。我们特意避免态度、信念和行为的相互交织,因此在另一本手册SpREUK - P问卷中探讨了灵性/宗教行为的不同形式和频率。

方法

SpREUK - P旨在区分灵性、宗教、存在主义和哲学行为。在354名德国受试者(71%为女性;年龄49.0±12.5岁)的样本中进行了测试。其中一半是健康对照,而在患者中,54%被诊断患有癌症,22%患有多发性硬化症,23%患有其他慢性病。根据标准程序对该量表进行了信度和因子分析。

结果

我们证实了先前描述的18项SpREUK - P手册的结构和一致性,并通过添加几个新项目提高了当前结构的质量。新的25项SpREUK - P 1.1(克朗巴哈系数=0.8517)有以下几个量表:(1)传统宗教行为(CRP),(2)存在主义行为(ExP),(3)非传统灵性行为(USP),(4)自然/环境导向行为(NoP),以及(5)人文主义行为(HuP)。在测试个体中,HuP和NoP的参与得分最高,而USP的得分最低。女性的ExP得分显著高于男性患者。在年龄方面,CRP的参与度随年龄增长而增加,而HuP的参与度则下降。具有基督教倾向以及宗教和灵性态度的个体在CRP上的参与得分最高,而对于灵性态度,USP的参与度较高。方差分析证实,SpR态度和宗教归属是CRP和ExP的主要相关协变量,而对于USP,SpR态度和教育水平具有重要意义,但宗教归属并非如此。总体而言,多发性硬化症患者在所有五种SpR行为形式上的参与得分最低,值得注意的是,癌症患者在HuP和USP上的得分低于健康受试者。

结论

目前对SpREUK - P问卷(1.1版)的重新评估表明,它是一种可靠、有效的测量方法,可用于测量五种不同形式的灵性、宗教和哲学行为,这在评估灵性和宗教信仰在健康相关研究中的作用时可能特别有用。我们工具的一个优点是,一方面信念和态度之间有明确的区分,另一方面这些态度在具体行为中的表达也很清晰。

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