Bourgou S, Halayem S, Bouden A, Halayem M B
Unité de recherche UR 02/04 Troubles cognitifs dans la pathologie psychiatrique, service de pédopsychiatrie, hôpital Razi, 11, rue des Orangers, La Mannouba 2010, Tunisie.
Encephale. 2012 Dec;38(6):473-9. doi: 10.1016/j.encep.2012.01.012. Epub 2012 May 29.
Initiating psychiatric treatment depends on several factors including clinical, personal, familial and economic factors. In the case of a first psychotic episode in an adolescent, parents, especially mothers, have a critical role in initiating psychiatric treatment for their child.
In this study, we investigated mothers' beliefs about their child's first psychotic episode.
Participants were adolescents consulting the department of Child and Adolescent Psychiatry of the Razi hospital in Tunisia. They were aged from 12 to 19 years at the onset of their medical follow-up. Their diagnoses were schizophrenia, schizoaffective disorder and schizophreniform disorder according to DSM-IV. A questionnaire was submitted to patients' mothers after their approval. It was divided into two parts. The first part was used to collect information on socio-demographic and clinical characteristics of the mothers and their children. The second part was composed of the following four questions in Tunisian dialect: (1) what did you think was the matter when you first noticed psychotic symptoms in your child? (2) what was the main reason for which you thought psychiatric treatment was necessary? (3) what obstacles did you perceive in initiating psychiatric treatment? (4) do you have any advice or suggestions for caregivers on how they could facilitate an early start of treatment?
Twenty-two mothers were included. The mean age of the mothers at onset of the follow-up of their child was 42 years (SD: 4.81). Ten mothers had never been schooled, five had primary school level, four had secondary school level, three had bachelor's degree and two had a diploma of doctorate; 63.6% of the mothers were housewives. The mean age of patients was 13.77 years at the start of their medical follow-up (SD= ± 2.14). Most of the patients were male (14 males for eight girls). Most patients were diagnosed as having schizophrenia (91%); 4.5% were diagnosed with schizoaffective disorder and 4.5% with schizophreniform disorder. The duration of untreated psychosis (DUP) was 11.5 months. Longer duration of untreated psychosis was associated with male gender (P=0.008). A significant relationship was also found between long DUP and stigmatization of mental hospital and psychiatry (respectively P=0.04 and P=0.05). Most of the mothers did not think that their child initially suffered from a psychotic disorder. In 63.3%, the cause of the child's symptomatology was attributed to spirit possession. The others reasons for seeking psychiatric treatment were: behavioral disorder in 77.3%, inefficacity of traditional practices in 54.5%, and patient refusal (40.9%). Stigmatization of the Razi hospital, the unique psychiatric hospital in the country, and of psychiatry in general were evoked by mothers as the main obstacles in initiating psychiatric treatment in more than half of the cases (70%). Others obstacles were: fear of side effects of psychiatric treatment (50%), patient refusal (40.9%), inaccessibility to psychiatric services (31.8%) and fear of an addiction to psychotropic agents (31.8%). Thirty-six percent of mothers underlined the need to consult in the occurrence of school difficulties or any change in the child's behavior; 27% proposed educational and anti-stigmatizing campaigns about the signs of early psychosis through radio, newspapers, cinema, and TV media advertisements. Making teachers and educators sensitive to psychosis was proposed by 13.6% of mothers; 9.1% thought that diagnostic skills should be improved in general practitioners.
Knowledge of attitudes of mothers towards the illness of their child prior to psychiatric treatment and towards the start of treatment is essential for the development of interventions for reducing duration of untreated psychosis.
启动精神科治疗取决于多个因素,包括临床、个人、家庭和经济因素。对于青少年首次出现精神病发作的情况,父母,尤其是母亲,在为孩子启动精神科治疗方面起着关键作用。
在本研究中,我们调查了母亲们对其孩子首次精神病发作的看法。
研究对象为在突尼斯拉齐医院儿童与青少年精神科就诊的青少年。他们在开始医学随访时年龄在12至19岁之间。根据《精神疾病诊断与统计手册》第四版(DSM-IV),他们的诊断为精神分裂症、分裂情感性障碍和精神分裂症样障碍。在患者母亲同意后,向她们发放了一份问卷。问卷分为两部分。第一部分用于收集母亲及其孩子的社会人口学和临床特征信息。第二部分由以下四个突尼斯方言问题组成:(1)当您首次注意到孩子出现精神病症状时,您认为是怎么回事?(2)您认为进行精神科治疗必要的主要原因是什么?(3)您在启动精神科治疗时察觉到了哪些障碍?(4)对于护理人员如何促进尽早开始治疗,您有任何建议或意见吗?
纳入了22位母亲。孩子开始随访时母亲的平均年龄为42岁(标准差:4.81)。10位母亲从未受过教育,5位具有小学学历,4位具有初中学历,3位具有学士学位,2位具有博士学位;63.6%的母亲是家庭主妇。患者开始医学随访时的平均年龄为13.77岁(标准差 = ± 2.14)。大多数患者为男性(14名男性,8名女性)。大多数患者被诊断为精神分裂症(91%);4.5%被诊断为分裂情感性障碍,4.5%被诊断为精神分裂症样障碍。未治疗精神病的持续时间(DUP)为11.5个月。未治疗精神病持续时间较长与男性性别相关(P = 0.008)。在未治疗精神病持续时间较长与对精神病院和精神病学的污名化之间也发现了显著关系(分别为P = 0.04和P = 0.05)。大多数母亲最初并不认为自己的孩子患有精神病性障碍。在63.3%的情况中,孩子症状的原因被归因于被鬼魂附身。寻求精神科治疗的其他原因包括:行为障碍(77.3%)、传统疗法无效(54.5%)以及患者拒绝(40.9%)。在超过一半的情况(70%)中,母亲们提到该国唯一的精神病院拉齐医院以及总体上的精神病学污名化是启动精神科治疗的主要障碍。其他障碍包括:担心精神科治疗的副作用(50%)、患者拒绝(40.9%)、无法获得精神科服务(31.8%)以及担心对精神药物成瘾(31.8%)。36%的母亲强调在孩子出现学业困难或行为有任何变化时需要咨询;27%提议通过广播、报纸、电影和电视媒体广告开展关于早期精神病症状的教育和反污名化运动。13.6%的母亲提议让教师和教育工作者对精神病有更敏锐的认识;9.1%的母亲认为全科医生的诊断技能应得到提高。
了解母亲在精神科治疗前对孩子疾病的态度以及对开始治疗的态度,对于制定减少未治疗精神病持续时间的干预措施至关重要。