Udo C, Lövgren M, Lundquist G, Axelsson B
School of Education, Health and Social Studies, Dalarna University, Falun, Sweden.
CKF, Centre for Clinical Research Dalarna, County Council of Dalarna, Falun, Sweden.
Eur J Cancer Care (Engl). 2018 Jan;27(1). doi: 10.1111/ecc.12728. Epub 2017 Jul 20.
The aim of this study was to explore palliative home care physicians' experiences regarding end-of-life breakpoint communication (BPC). This is a qualitative study where focus group interviews were conducted and analysed using qualitative content analysis. The results show that the participants saw themselves as being responsible for accomplishing BPC, and they were convinced that it should be regarded as a process of communication initiated at an early stage, i.e. proactively. However, BPC was often conducted as a reaction to the patient's sudden deterioration or sometimes not at all. The barriers to achieving proactive BPC included physicians' uncertainty regarding the timing of BPC, primarily due to difficulties in prognostication in terms of time of death, and uncertainty as to what BPC should include and how it should best be approached. Furthermore, there was insufficient documentation regarding previous BPC, which impeded proactive BPC. Although our study shows that physicians are ambitious when it comes to the communication of information to patients and families, there is a need for further training in how to conduct BPC and when to initiate the BPC process. Furthermore, there should be documentation that different professionals can access as this would appear to facilitate a proactive BPC process.
本研究的目的是探讨姑息性家庭护理医生在临终转折点沟通(BPC)方面的经验。这是一项定性研究,通过焦点小组访谈并运用定性内容分析法进行分析。结果显示,参与者认为自己有责任完成BPC,并且坚信它应被视为一个在早期阶段就主动发起的沟通过程。然而,BPC往往是对患者突然病情恶化的一种反应,有时甚至根本没有进行。实现主动BPC的障碍包括医生对BPC时机的不确定性,主要是由于在预测死亡时间方面存在困难,以及对BPC应包含哪些内容以及应如何最佳进行存在不确定性。此外,关于先前BPC的记录不足,这阻碍了主动BPC。尽管我们的研究表明医生在向患者和家属传达信息方面很有抱负,但仍需要进一步培训如何进行BPC以及何时启动BPC过程。此外,应该有不同专业人员都能获取的记录,因为这似乎有助于主动BPC过程。