Sandén Ulrika, Harrysson Lars, Thulesius Hans, Nilsson Fredrik
a Department of Design Sciences , Lund University , Lund , Sweden.
b School of Social work , Lund University , Lund , Sweden.
Int J Qual Stud Health Well-being. 2017;12(sup2):1374809. doi: 10.1080/17482631.2017.1374809.
The technocratic and medicalized model of healthcare is rarely optimal for patients. By connecting two different studies we explore the possibilities of increasing quality of life in cancer care.
The first study captures survival strategies in a historically isolated Arctic village in Norway resulting in Momentary contentment theory, which emerged from analysing four years of participant observation and interview data. The second study conceptualizes everyday life of cancer patients based on in-depth interviews with 19 cancer patients; this was conceptualized as Navigating a new life situation. Both studies used classic grounded theory methodology. The connection between the studies is based on a health design approach.
We found a fit between cancer patients challenging life conditions and harsh everyday life in an Arctic village. Death, treatments and dependence have become natural parts of life where the importance of creating spaces-of-moments and a Sense of Safety is imminent to well-being. While the cancer patients are in a new life situation, the Arctic people show a natural ability to handle uncertainties.
By innovation theories connected to design thinking, Momentary contentment theory modified to fit cancer care would eventually be a way to improve cancer patients' quality of life.
医疗保健的技术官僚和医学化模式对患者而言很少是最佳的。通过将两项不同的研究联系起来,我们探索提高癌症护理中生活质量的可能性。
第一项研究在挪威一个历史上与世隔绝的北极村庄捕捉生存策略,由此产生了瞬间满足理论,该理论源于对四年参与观察和访谈数据的分析。第二项研究基于对19名癌症患者的深入访谈,将癌症患者的日常生活概念化;这被概念化为应对新生活状况。两项研究均采用经典的扎根理论方法。两项研究之间的联系基于一种健康设计方法。
我们发现癌症患者具有挑战性的生活状况与北极村庄艰苦的日常生活之间存在契合点。死亡、治疗和依赖已成为生活的自然组成部分,在此,创造瞬间空间和安全感对幸福至关重要。虽然癌症患者处于新生活状况中,但北极地区的人们表现出应对不确定性的天然能力。
通过与设计思维相关的创新理论,经修改以适用于癌症护理的瞬间满足理论最终将成为提高癌症患者生活质量的一种方式。