Ruth F. Hunter, Aisling Gough, Niamh O'Kane, Michelle McKinley, and Frank Kee are with the United Kingdom Clinical Research Collaboration Centre of Excellence for Public Health/Centre for Public Health, Queen's University Belfast, Belfast. Gary McKeown and Aine Fitzpatrick are with the School of Psychology, Queen's University Belfast. Tom Walker is with the School of History, Anthropology, Philosophy and Politics, Queen's University Belfast. Mandy Lee is with the Centre for Health Policy and Management School of Medicine, Trinity College Dublin, Dublin, Ireland.
Am J Public Health. 2018 Mar;108(3):343-348. doi: 10.2105/AJPH.2017.304249. Epub 2018 Jan 18.
Social media (SM) offer huge potential for public health research, serving as a vehicle for surveillance, delivery of health interventions, recruitment to trials, collection of data, and dissemination. However, the networked nature of the data means they are riddled with ethical challenges, and no clear consensus has emerged as to the ethical handling of such data. This article outlines the key ethical concerns for public health researchers using SM and discusses how these concerns might best be addressed. Key issues discussed include privacy; anonymity and confidentiality; authenticity; the rapidly changing SM environment; informed consent; recruitment, voluntary participation, and sampling; minimizing harm; and data security and management. Despite the obvious need, producing a set of prescriptive guidelines for researchers using SM is difficult because the field is evolving quickly. What is clear, however, is that the ethical issues connected to SM-related public health research are also growing. Most importantly, public health researchers must work within the ethical principles set out by the Declaration of Helsinki that protect individual users first and foremost.
社交媒体(SM)为公共卫生研究提供了巨大的潜力,可作为监测、提供健康干预措施、招募试验、收集数据和传播的工具。然而,由于数据的网络性质,它们充满了伦理挑战,对于如何妥善处理此类数据,尚未达成明确共识。本文概述了使用社交媒体的公共卫生研究人员的主要伦理问题,并讨论了如何最好地解决这些问题。讨论的关键问题包括隐私;匿名和保密性;真实性;快速变化的社交媒体环境;知情同意;招募、自愿参与和抽样;将伤害最小化;以及数据安全和管理。尽管有明显的需求,但为使用社交媒体的研究人员制定一套规范性指南是困难的,因为该领域发展迅速。然而,显而易见的是,与社交媒体相关的公共卫生研究相关的伦理问题也在不断增加。最重要的是,公共卫生研究人员必须首先遵守《赫尔辛基宣言》中规定的保护个人用户的伦理原则。