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EpApp:一款针对癫痫青少年的智能手机/平板电脑应用程序的开发与评估

EpApp: Development and evaluation of a smartphone/tablet app for adolescents with epilepsy.

作者信息

Le Marne Fleur A, Butler Sharlene, Beavis Erin, Gill Deepak, Bye Ann M E

机构信息

Department of Neurology, Level 4 Emergency Wing, Sydney Children's Hospitals Network, High Street, Randwick, NSW 2031, Australia; School of Women's and Children's Health, University of New South Wales, High Street, Randwick, NSW 2031, Australia.

Department of Neurology, Level 4 Emergency Wing, Sydney Children's Hospitals Network, High Street, Randwick, NSW 2031, Australia.

出版信息

J Clin Neurosci. 2018 Apr;50:214-220. doi: 10.1016/j.jocn.2018.01.065.

Abstract

The study aimed to comprehensively evaluate a mobile application (EpApp), designed with stakeholder input, to educate and facilitate management of adolescents with epilepsy. A prospective cohort of adolescents with epilepsy (13-19 years) and their parent/carer participated between June 2015 and December 2016. Primary outcome measure was knowledge acquisition. Secondary outcomes were psychosocial variables (attitude towards illness and seizure self-efficacy) and clinical parameters (medication adherence, seizure burden). Functionality, design, content and app utility were appraised via survey and open-ended questions. 51 adolescents completed baseline surveys (mean age 14.49 years), 36 follow-up surveys. Both self and general epilepsy knowledge increased following intervention (p ≤ 0.005). Significantly fewer medication reminders were required during intervention (M = 2.93, p = .002) and follow-up (M = 3.54, p = .030) compared to baseline (M = 6.64). Measures of app design, content, functionality and utility were very favourable. There was no significant improvement in seizure burden, or psychosocial parameters. Educational page-visits reflected interests and concerns. This study demonstrates that EpApp increases knowledge and is engaging. The app is available free, internationally via Android/Apple platforms.

摘要

该研究旨在全面评估一款在利益相关者参与下设计的移动应用程序(EpApp),以教育并促进对癫痫青少年的管理。2015年6月至2016年12月期间,一个由癫痫青少年(13 - 19岁)及其父母/照顾者组成的前瞻性队列参与了研究。主要结局指标是知识获取。次要结局包括心理社会变量(对疾病的态度和癫痫发作自我效能感)以及临床参数(药物依从性、癫痫发作负担)。通过调查和开放式问题对该应用程序的功能、设计、内容和实用性进行了评估。51名青少年完成了基线调查(平均年龄14.49岁),36名完成了随访调查。干预后,自我癫痫知识和一般癫痫知识均有所增加(p≤0.005)。与基线(M = 6.64)相比,干预期间(M = 2.93,p = 0.002)和随访期间(M = 3.54,p = 0.030)所需的药物提醒明显减少。对该应用程序的设计、内容、功能和实用性的评估结果非常良好。癫痫发作负担或心理社会参数没有显著改善。教育页面的访问量反映了兴趣和关注点。本研究表明,EpApp增加了知识且具有吸引力。该应用程序可通过安卓/苹果平台在国际范围内免费获取。

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