Ploeg Jenny, Ali Muhammad Usman, Markle-Reid Maureen, Valaitis Ruta, Bartholomew Amy, Fitzpatrick-Lewis Donna, McAiney Carrie, Sherifali Diana
Aging, Community and Health Research Unit, School of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, ON, Canada.
Department of Health, Aging and Society, McMaster University, Hamilton, ON, Canada.
J Med Internet Res. 2018 Oct 26;20(10):e11247. doi: 10.2196/11247.
Approaches to support the health and well-being of family caregivers of adults with chronic conditions are increasingly important given the key roles caregivers play in helping family members to live in the community. Web-based interventions to support caregivers have the potential to lessen the negative health impacts associated with caregiving and result in improved health outcomes.
The primary objective of this systematic review and meta-analysis was to examine the effect of caregiver-focused, Web-based interventions, compared with no or minimal Web-based interventions, on caregiver outcomes. The secondary objective was to assess the effect of different types of Web-based interventions (eg, education, peer and professional psychosocial support, and electronic monitoring of the care recipient), compared with no or minimal Web-based interventions, on caregiver outcomes.
MEDLINE, EMBASE, CIHAHL, PsychInfo, Cochrane, and AgeLine were searched from January 1995 to April 2017 for relevant randomized controlled trials (RCTs) or controlled clinical trials (CCTs) that compared caregiver-focused, Web-based intervention programs with no or minimal Web-based interventions for caregivers of adults with at least one chronic condition. Studies were included if they involved: adult family or friend caregivers (aged ≥18 years) of adults living in the community with a chronic condition; a caregiver-focused, Web-based intervention of education or psychosocial support or electronic monitoring of the care recipient; and general caregiver outcomes (ie, burden, life satisfaction, self-efficacy or mastery, reaction to problem behavior, self-esteem, strain, and social support). Title and abstract as well as full-text screening were completed in duplicate. Data were extracted by a single reviewer and verified by a second reviewer, and risk of bias assessments were completed accordingly. Where possible, data for these caregiver outcomes were meta-analyzed.
The search yielded 7927 unique citations, of which 294 studies were screened at full text. Of those, 14 studies met the inclusion criteria; 12 were RCTs and 1 study was a CCT. One study used an RCT design in 1 country and a CCT design in 2 other countries. The beneficial effects of any Web-based intervention program, compared with no or minimal Web-based intervention, resulted in a mean increase of 0.85 points (95% CI 0.12 to 1.57) for caregiver self-esteem, a mean increase of 0.36 points (95% CI 0.11 to 0.62) for caregiver self-efficacy or mastery, and a mean decrease of 0.32 points (95% CI -0.54 to -0.09) for caregiver strain. However, the results are based on poor-quality studies.
The review found evidence for the positive effects of Web-based intervention programs on self-efficacy, self-esteem, and strain of caregivers of adults living with a chronic condition. Further high-quality research is needed to inform the effectiveness of specific types of Web-based interventions on caregiver outcomes.
PROSPERO CRD42018091715; https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=91715 (Archived by WebCite at http://www.webcitation.org/738zAa5F5).
鉴于照顾者在帮助慢性病成年家庭成员在社区生活中所起的关键作用,支持慢性病成年患者家庭照顾者的健康和幸福的方法变得越来越重要。基于网络的照顾者支持干预措施有可能减轻与照顾相关的负面健康影响,并改善健康结果。
本系统评价和荟萃分析的主要目的是研究与无或极少基于网络的干预措施相比,以照顾者为中心的基于网络的干预措施对照顾者结局的影响。次要目的是评估与无或极少基于网络的干预措施相比,不同类型的基于网络的干预措施(如教育、同伴和专业心理社会支持以及对受照顾者的电子监测)对照顾者结局的影响。
检索1995年1月至2017年4月期间的MEDLINE、EMBASE、CIHAHL、PsychInfo、Cochrane和AgeLine,查找相关的随机对照试验(RCT)或对照临床试验(CCT),这些试验将以照顾者为中心的基于网络的干预项目与针对至少患有一种慢性病的成年患者照顾者的无或极少基于网络的干预措施进行比较。纳入的研究需涉及:社区中患有慢性病的成年患者的成年家庭或朋友照顾者(年龄≥18岁);以照顾者为中心的基于网络的教育或心理社会支持干预措施或对受照顾者的电子监测;以及一般照顾者结局(即负担、生活满意度、自我效能感或掌控感、对问题行为的反应、自尊、压力和社会支持)。标题和摘要以及全文筛选均重复进行。数据由一名审阅者提取,并由另一名审阅者核实,同时相应地完成偏倚风险评估。在可能的情况下,对这些照顾者结局的数据进行荟萃分析。
检索共获得7927条独特的文献引用,其中294项研究进行了全文筛选。其中,14项研究符合纳入标准;12项为随机对照试验,1项为对照临床试验。一项研究在一个国家采用随机对照试验设计,在另外两个国家采用对照临床试验设计。与无或极少基于网络的干预措施相比,任何基于网络的干预项目的有益效果导致照顾者自尊平均提高0.85分(95%CI 0.12至1.57),照顾者自我效能感或掌控感平均提高0.(此处原文有误,应为0.36)36分(95%CI 0.11至0.62),照顾者压力平均降低0.32分(95%CI -0.54至-0.09)。然而,这些结果基于质量较差的研究。
该评价发现有证据表明基于网络的干预项目对慢性病成年患者照顾者 的自我效能感、自尊和压力有积极影响。需要进一步开展高质量研究,以了解特定类型的基于网络的干预措施对照顾者结局的有效性。
PROSPERO CRD42018091715;https://www.crd.york.ac.uk/prospero/display_record.php?RecordID=91715(由WebCite存档于http://www.webcitation.org/738zAa5F5)