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经胃造口管给予混合饮食的患者和照护者体验:一项定性研究。

Patient and carer experience of blended diet via gastrostomy: a qualitative study.

机构信息

Leicestershire Partnership NHS Trust, Leicester, Leicestershire, UK.

出版信息

J Hum Nutr Diet. 2019 Jun;32(3):391-399. doi: 10.1111/jhn.12614. Epub 2018 Dec 2.

Abstract

BACKGROUND

Home enteral feeding is becoming increasingly prevalent within the UK. The use of commercial prescription formula is considered best practice; however, increasingly, patients are choosing to use blended diet via gastrostomy. There is anecdotal evidence suggesting both physical and social benefits, although there are concerns regarding the safety and efficacy of this method of feeding. The present study explores the experiences of patients who are currently using or have used this method of feeding in the past.

METHODS

Patients currently using or having previously used blended diet via gastrostomy were identified. Patients and their carers, where applicable, were invited to participate in a semi-structured interview. The data were transcribed and themes were identified.

RESULTS

Thematic analysis of the data collected showed that patients had an overall positive experience of blended diet with few or no identified disadvantages. Participants reported improvements in gastrointestinal symptoms, as well as general wellbeing, in addition to the social benefits of their family member being included in family mealtimes. Reference was made to the lack of support for this method of feeding and the desire for blended diet to be offered as an alternative to commercial enteral feed.

CONCLUSIONS

This research highlights the benefits of blended diet via gastrostomy as an alternative to commercial formula. More research is needed to develop evidence-based guidelines for patients and the healthcare professionals supporting them.

摘要

背景

家庭肠内喂养在英国越来越普遍。使用商业处方配方被认为是最佳实践;然而,越来越多的患者选择通过胃造口术使用混合饮食。有一些传闻证据表明这种方法具有身体和社会方面的益处,尽管人们对这种喂养方法的安全性和有效性存在担忧。本研究探讨了目前正在使用或过去曾使用过这种喂养方法的患者的体验。

方法

确定了目前正在使用或曾经使用过胃造口术混合饮食的患者。邀请患者及其照顾者(如适用)参加半结构化访谈。对收集的数据进行主题分析。

结果

对收集到的数据的主题分析表明,患者对混合饮食有总体上的积极体验,几乎没有或没有发现缺点。参与者报告胃肠道症状有所改善,整体健康状况也有所改善,此外,他们的家庭成员还可以参与家庭用餐,这也带来了一些社会益处。研究中提到了对这种喂养方法缺乏支持,以及希望提供混合饮食作为商业肠内喂养的替代方案。

结论

这项研究强调了通过胃造口术使用混合饮食作为商业配方替代方案的益处。需要进一步研究,为患者和支持他们的医疗保健专业人员制定基于证据的指南。

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