Jennings Nicholas, Chambaere Kenneth, Deliens Luc, Cohen Joachim
End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) and Ghent University, Brussels, Belgium
Bioethics Department, St George's University School of Medicine, St George's, Grenada.
BMJ Support Palliat Care. 2020 Sep;10(3):e30. doi: 10.1136/bmjspcare-2018-001631. Epub 2019 Jan 18.
Low/middle-income countries, particularly Small Island Developing States, face many challenges including providing good palliative care and choice in place of care and death, but evidence of the circumstances of dying to inform policy is often lacking. This study explores where people die in Trinidad and Tobago and examines and describes the factors associated with place of death.
A population-level analysis of routinely collected death certificate and supplementary health data where the unit of analysis was the recorded death. We followed the Reporting of Studies Conducted Using Observational Routinely Collected Health Data reporting guidelines, an extension of Strengthening the Reporting of Observational Studies in Epidemiology, on a deidentified data set on decedents (n=10 221) extracted from International Statistical Classification of Diseases version 10 coded death records for the most recent available year, 2010.
Of all deaths, 55.4% occurred in a government hospital and 29.7% in a private home; 65.3% occurred in people aged 60 years and older. Cardiovascular disease (23.6%), malignancies (15.5%) and diabetes mellitus (14.7%) accounted for over half of all deaths. Dying at home becomes more likely with increasing age (70-89 years (OR 1.91, 95% CI 1.73 to 2.10) and 90-highest (OR 3.63, 95% CI 3.08 to 4.27)), and less likely for people with malignancies (OR 0.85, 95% CI 0.74 to 0.97), cerebrovascular disease (OR 0.61, 95% CI 0.51 to 0.72) and respiratory disease (OR 0.74, 95% CI 0.59 to 0.91).
Place of death is influenced by age, sex, race/ethnicity, underlying cause of death and urbanisation. There is inequality between ethnic groups regarding place of care and death; availability, affordability and access to end-of-life care in different settings require attention.
低收入和中等收入国家,特别是小岛屿发展中国家,面临诸多挑战,包括提供优质的姑息治疗以及在临终关怀地点和死亡地点方面提供选择,但往往缺乏有关死亡情况的证据来为政策提供参考。本研究探讨了特立尼达和多巴哥的人们在何处死亡,并调查和描述了与死亡地点相关的因素。
对常规收集的死亡证明和补充健康数据进行人群水平分析,分析单位为记录在案的死亡情况。我们遵循《使用常规收集的健康数据进行研究的报告》的报告指南,该指南是对《加强流行病学观察性研究报告》的扩展,基于从2010年最新可得年份的国际疾病分类第10版编码死亡记录中提取的关于死者的去识别化数据集(n = 10221)。
在所有死亡病例中,55.4%发生在政府医院,29.7%发生在私人住宅;65.3%发生在60岁及以上人群中。心血管疾病(23.6%)、恶性肿瘤(15.5%)和糖尿病(14.7%)占所有死亡病例的一半以上。随着年龄增长,在家中死亡的可能性增加(70 - 89岁(比值比1.91,95%置信区间1.73至2.10)和90岁及以上(比值比3.63,95%置信区间3.08至4.27)),而患有恶性肿瘤(比值比0.85,95%置信区间0.74至0.97)、脑血管疾病(比值比0.61,95%置信区间0.51至0.72)和呼吸系统疾病(比值比0.74,95%置信区间0.59至0.91)的人在家中死亡的可能性较小。
死亡地点受年龄、性别、种族/民族、潜在死因和城市化程度的影响。不同种族群体在护理和死亡地点方面存在不平等;不同环境下临终关怀的可及性、可负担性和获取情况需要关注。