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改善视力障碍儿童的功能、参与和生活质量的干预措施:系统评价。

Interventions to improve functioning, participation, and quality of life in children with visual impairment: a systematic review.

机构信息

Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Ophthalmology, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.

Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Ophthalmology, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands.

出版信息

Surv Ophthalmol. 2019 Jul-Aug;64(4):512-557. doi: 10.1016/j.survophthal.2019.01.010. Epub 2019 Jan 28.

Abstract

Visual impairment in childhood often has life-long implications. To aim for the highest levels of functioning, participation, and quality of life and to ensure children's well-being, children should be entitled to the most effective rehabilitation programs. We review evidence for the effectiveness of rehabilitation interventions for children with visual impairment to improve skills and behavior, thereby improving participation and quality of life as an ultimate goal. Of the 441 potentially relevant articles identified, 66 studies met our inclusion criteria (i.e., 28 randomized controlled trials, 18 nonrandomized controlled trials, and 20 before-after comparisons). The results suggest that sports camps, prescription and training in the use of low vision devices, and oral hygiene programs might be effective in improving functioning and elements of participation and quality of life in children with visual impairment. Other interventions showed mixed or negative results. The results should be interpreted with caution because of moderate to high risk of bias and suboptimal reporting. Heterogeneity of results and the use of over 50 different outcome measures prevented a meta-analysis. Future studies should focus on promising interventions for which effectiveness is still unclear (e.g., mobility, social skills), with adequately designed methodology.

摘要

儿童视力障碍往往会产生终身影响。为了实现最高水平的功能、参与度和生活质量,并确保儿童的福祉,儿童应该有权获得最有效的康复计划。我们回顾了针对视觉障碍儿童的康复干预措施的有效性证据,以提高技能和行为,从而提高参与度和生活质量作为最终目标。在确定的 441 篇潜在相关文章中,有 66 项研究符合我们的纳入标准(即 28 项随机对照试验、18 项非随机对照试验和 20 项前后对照)。结果表明,运动营、低视力设备的处方和使用培训以及口腔卫生计划可能有助于改善视力障碍儿童的功能以及参与度和生活质量的要素。其他干预措施的结果喜忧参半。由于存在中度到高度偏倚风险和报告不充分,结果应谨慎解释。结果的异质性和 50 多种不同的结果衡量标准的使用阻止了荟萃分析的进行。未来的研究应侧重于有效性仍不明确的有前途的干预措施(例如,移动性、社交技能),并采用适当的设计方法。

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