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影响狼疮诊所中使用计算机化、个体化、文化适应的狼疮决策辅助工具的因素:一项定性半结构式访谈研究。

Factors influencing implementation of a computerized, individualized, culturally tailored lupus decision aid in lupus clinics: a qualitative semi-structured interview study.

机构信息

Department of Health Services Administration, School of Health Professions, University of Alabama at Birmingham, SHPB 580D, 1716 9th Avenue, South Birmingham, AL, 35294-1212, USA.

Division of Clinical Immunology and Rheumatology, School of Medicine, University of Alabama at Birmingham, 510 20th Street, South Faculty Office Tower 805B, Birmingham, AL, 35294, USA.

出版信息

Clin Rheumatol. 2019 Oct;38(10):2793-2801. doi: 10.1007/s10067-019-04643-w. Epub 2019 Jun 20.

Abstract

OBJECTIVE

To identify factors that might facilitate or impede the implementation of a shared decision-making in lupus electronic tool (SMILE) in clinics by assessing perspectives of clinicians, clinic champions, and patient advocacy organization leaders.

METHODS

We conducted a series of semi-structured telephone interviews (25-45 minutes) about facilitators and barriers of implementing the SMILE decision-aid tool with 23 lupus care providers (18 physicians, 5 champions), and leaders of two patient advocacy organizations. Interviews were audio recorded, transcribed, coded, and analyzed.

RESULTS

Physicians and clinic champions were from 18 geographically diverse US clinics. The patient advocacy leaders were from the Lupus Foundation of America and the Arthritis Foundation. Most of the clinics were rheumatology specialty (94%), at university-based academic centers (72%), located in urban areas (72%), had a specialized lupus clinic (72%), were very interested (72%) in the SMILE tool and were ready to implement it (89%). Several specific factors, composed as four themes, were identified that could either facilitate or impede the implementation of the SMILE tool: (1) patient-related theme: patient recruitment and education, and the clinic visit time; (2) clinic-related theme: staff work-load and time, and physical space to view and use the SMILE tool; (3) technology-related theme: Wi-Fi connection and iPad navigation; and (4) management-related theme: influence on the clinics' daily workflow, the need of a study champion and coordination, and leadership support.

CONCLUSION

Physicians, staff, and patient advocacy leaders perceived the SMILE as a promising tool to facilitate patient-provider communication and quality improvement in lupus. Identification of the patient-, clinic-, technology-, and management-related barriers to the SMILE implementation will allow its integration into busy clinical practice workflow. Key Points • Physicians, staff and patient advocacy leaders perceived computerized lupus decision aid to be a promising tool to facilitate shared decision-making for lupus treatment. • Stakeholder identified patient-related, clinic-resource-related, technology-related and clinic-management related themes as barriers or facilitators to viewing computerized lupus decision aid during regular clinic visits.

摘要

目的

通过评估临床医生、诊所拥护者和患者权益倡导组织领导者的观点,确定可能促进或阻碍狼疮电子工具(SMILE)共享决策实施的因素。

方法

我们对 23 名狼疮护理提供者(18 名医生,5 名拥护者)和两名患者权益倡导组织的领导者进行了一系列关于实施 SMILE 决策辅助工具的促进因素和障碍的半结构式电话访谈(25-45 分钟)。访谈进行了录音、转录、编码和分析。

结果

医生和诊所拥护者来自美国 18 个地理位置不同的诊所。患者权益倡导组织的领导者分别来自美国狼疮基金会和关节炎基金会。大多数诊所是风湿病专科(94%),位于大学附属医院(72%),位于城市地区(72%),设有专门的狼疮诊所(72%),对 SMILE 工具非常感兴趣(72%)并准备实施(89%)。确定了四个主题的几个具体因素,这些因素可能会促进或阻碍 SMILE 工具的实施:(1)患者相关主题:患者招募和教育,以及就诊时间;(2)诊所相关主题:员工工作量和时间,以及查看和使用 SMILE 工具的物理空间;(3)技术相关主题:Wi-Fi 连接和 iPad 导航;以及(4)管理相关主题:对诊所日常工作流程的影响,对研究拥护者和协调的需求,以及领导支持。

结论

医生、工作人员和患者权益倡导组织的领导者认为 SMILE 是一种很有前途的工具,可以促进狼疮患者与提供者之间的沟通和质量改进。确定 SMILE 实施的患者、诊所、技术和管理相关障碍将有助于将其整合到繁忙的临床实践工作流程中。

关键点

  1. 医生、工作人员和患者权益倡导组织的领导者认为,计算机化的狼疮决策辅助工具是促进狼疮治疗共享决策的有前途的工具。

  2. 利益相关者确定了与患者相关、诊所资源相关、技术相关和诊所管理相关的主题,作为在常规诊所就诊期间查看计算机化狼疮决策辅助工具的障碍或促进因素。

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