Department of Nursing Science, Physiotherapy and Medicine, University of Almeria, 04120 Almeria, Spain.
Adult, Child and Midwifery Department, School of Health and Education, Middlesex University, London NW4 4BT, UK.
Int J Environ Res Public Health. 2019 Oct 7;16(19):3762. doi: 10.3390/ijerph16193762.
Caring for a person diagnosed with Alzheimer's disease has a negative impact on family caregivers' psychological health. This study examined the factors related to 'perceived health' and 'presence of new-onset mental health problems' in family caregivers of people diagnosed with mild and moderate Alzheimer's disease. A cross-sectional observational study carried out in Almeria's Healthcare District (Spain). A total of 255 family caregivers (42.4% cared for people with mild Alzheimer's disease and 57.6% cared for people with moderate Alzheimer's disease) participated in the study from January to December 2015. Mainly, caregivers were women (81.5% in the mild Alzheimer's disease group and 88.4% in the moderate Alzheimer's disease group), and their average age was 56.54 years (standard deviation (SD) = 13.13) and 54.47 years (SD = 11.71), respectively. Around 47% of the caregivers had been caring for the person with Alzheimer's between two and five years. The Goldberg General Health Questionnaire was used to measure perceived health and the presence of new-onset mental health problems. An exploratory descriptive analysis and a multivariate logistic regression analysis were conducted. For caregivers of people with mild Alzheimer's disease, 'perceived health' was related to 'perceived social support' ( = -0.21; = 0.028), 'person's level of dependency' ( = -0.24, = 0.05), 'severity of the person's neuropsychiatric symptoms' ( = 0.22; = 0.05), and 'caregiver's emotional distress in response to the person's neuropsychiatric symptoms' ( = 0.22; = 0.05). For caregivers of people with moderate Alzheimer's disease, 'perceived health' was related to 'perceived social support' ( = -0.31; ˂ 0.01), 'presence of neuropsychiatric symptoms' ( = 0.27, = 0.01), 'severity of the person's neuropsychiatric symptoms' ( = 0.32, = 0.01) and 'caregiver's emotional distress in response to the person's neuropsychiatric symptoms' ( = 0.029; = 0.01). The presence of new-onset mental health problems was detected in 46.3% ( = 50) of caregivers of people with mild Alzheimer's and 61.9% ( = 91) of caregivers of people with moderate Alzheimer's. When people are diagnosed with mild Alzheimer's disease, intervention programs for caregivers should aim to regulate emotions and promote positive coping strategies. When people are diagnosed with moderate Alzheimer's disease, intervention programs for caregivers must allow them to adapt to caregiving demands that arise with the progression of Alzheimer's disease.
照顾被诊断患有老年痴呆症的人会对家庭照顾者的心理健康产生负面影响。本研究旨在探讨与轻度和中度阿尔茨海默病患者家庭照顾者的“感知健康”和“新发心理健康问题的出现”相关的因素。这是在阿尔梅里亚医疗保健区(西班牙)进行的一项横断面观察性研究。2015 年 1 月至 12 月期间,共有 255 名家庭照顾者(42.4%照顾轻度阿尔茨海默病患者,57.6%照顾中度阿尔茨海默病患者)参与了研究。主要的照顾者是女性(轻度阿尔茨海默病组为 81.5%,中度阿尔茨海默病组为 88.4%),平均年龄分别为 56.54 岁(标准差(SD)=13.13)和 54.47 岁(SD=11.71)。大约 47%的照顾者照顾阿尔茨海默病患者的时间在两到五年之间。使用 Goldberg 一般健康问卷来衡量感知健康和新发心理健康问题的出现。进行了探索性描述性分析和多变量逻辑回归分析。对于轻度阿尔茨海默病患者的照顾者,“感知健康”与“感知社会支持”( = -0.21; = 0.028)、“患者的依赖程度”( = -0.24, = 0.05)、“患者神经精神症状的严重程度”( = 0.22; = 0.05)和“照顾者对患者神经精神症状的情绪困扰”( = 0.22; = 0.05)有关。对于中度阿尔茨海默病患者的照顾者,“感知健康”与“感知社会支持”( = -0.31; ˂ 0.01)、“神经精神症状的存在”( = 0.27, = 0.01)、“患者神经精神症状的严重程度”( = 0.32, = 0.01)和“照顾者对患者神经精神症状的情绪困扰”( = 0.029; = 0.01)有关。在轻度阿尔茨海默病患者的照顾者中,有 46.3%(=50)和中度阿尔茨海默病患者的照顾者中,有 61.9%(=91)被检测出新发心理健康问题。当人们被诊断患有轻度阿尔茨海默病时,应为照顾者提供干预计划,以调节情绪并促进积极的应对策略。当人们被诊断患有中度阿尔茨海默病时,照顾者的干预计划必须使他们能够适应因阿尔茨海默病的发展而产生的护理需求。