Abdoli Samereh, Vora Anusha, Smither Betsy, Roach Ashley Danielle, Vora Amit C
University of Tennessee, College of Nursing, Knoxville, TN, United States of America.
Webb High School, Knoxville, TN, United States of America.
Appl Nurs Res. 2020 Aug;54:151317. doi: 10.1016/j.apnr.2020.151317. Epub 2020 Jun 11.
The purpose of the study was to explore the description of diabetes burnout in parents of children with type 1 diabetes (T1D).
Parents of children with T1D struggle to balance diabetes management and typical parenting challenges, which may lead to diabetes burnout. Although diabetes burnout is a familiar concept in public forum and diabetes literature, science on diabetes burnout in parents is lacking.
In this qualitative descriptive study, a systematic approach was used to search existing relevant YouTube videos about diabetes burnout produced by parents of children with T1D. Verbatim transcripts of 21 videos meeting inclusion criteria were analyzed using a qualitative content analysis approach. To summarize video characteristics, descriptive statistics were used.
It identifies four primary themes related to diabetes burnout in this population: "exhaustion compounded by stress," "powerlessness to control diabetes," "grief for the loss of a normal life," and "coping strategies."
The findings of this study may serve to clarify how parents of children with T1D may experience diabetes burnout. The findings may also inform diabetes care and illuminate the role of social media in improving family center support.
本研究旨在探讨1型糖尿病(T1D)患儿家长的糖尿病倦怠情况。
T1D患儿的家长努力在糖尿病管理和典型育儿挑战之间取得平衡,这可能导致糖尿病倦怠。尽管糖尿病倦怠在公共论坛和糖尿病文献中是一个常见概念,但关于家长糖尿病倦怠的科学研究却很缺乏。
在这项定性描述性研究中,采用系统方法搜索T1D患儿家长制作的有关糖尿病倦怠的现有相关YouTube视频。使用定性内容分析方法对符合纳入标准的21个视频的逐字记录进行分析。为总结视频特征,使用了描述性统计。
本研究确定了该人群中与糖尿病倦怠相关的四个主要主题:“压力加剧疲惫”、“对控制糖尿病感到无力”、“对失去正常生活的悲痛”以及“应对策略”。
本研究结果可能有助于阐明T1D患儿家长如何经历糖尿病倦怠。这些结果还可能为糖尿病护理提供信息,并阐明社交媒体在改善家庭中心支持方面的作用。