Department of Paediatric Physiotherapy, Royal Brompton Hospital, London, UK.
Department of Paediatric Cystic Fibrosis, Royal Brompton Hospital, London, UK.
Paediatr Respir Rev. 2022 Jun;42:23-28. doi: 10.1016/j.prrv.2021.05.002. Epub 2021 May 19.
There has been growing interest in telemedicine for cystic fibrosis over recent years based largely on convenience for patients and/or increasing the frequency of surveillance and early detection which, it is assumed, could improve treatment outcomes. During 2020, the covid-19 pandemic catalysed the pace of development of this field, as CF patients were presumed to be at high risk of infection. Most clinics adapted to digital platforms with provision of lung function monitoring and sample collection systems. Here, we present the views of multidisciplinary team members at a large paediatric CF centre on what has worked well and what requires further optimisation in the future. In response to the question posed, 'Do we still need face to face clinics?' our answer is 'Yes, but not every time, and not for everyone'.
近年来,远程医疗在囊性纤维化领域越来越受到关注,这主要是基于方便患者和/或增加监测和早期发现的频率,人们认为这可以改善治疗效果。2020 年期间,covid-19 大流行加速了这一领域的发展,因为囊性纤维化患者被认为感染的风险很高。大多数诊所都适应了数字平台,提供了肺功能监测和样本采集系统。在这里,我们介绍了一家大型儿科囊性纤维化中心的多学科团队成员的观点,他们就哪些方面做得好以及未来哪些方面需要进一步优化发表了看法。针对提出的问题“我们是否还需要面对面的诊所?”我们的回答是“是的,但不是每次都需要,也不是每个人都需要”。