School of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada.
Maritime SPOR SUPPORT Unit, Halifax, Nova Scotia, Canada.
Health Expect. 2022 Dec;25(6):2614-2627. doi: 10.1111/hex.13568. Epub 2022 Sep 8.
Improving healthcare for people with multiple chronic or ongoing conditions is receiving increased attention, particularly due to the growing number of people experiencing multimorbidity (MM) and concerns about the sustainability of the healthcare system. Primary care has been promoted as an important resource for supporting people with MM to live well with their conditions and to prevent unnecessary use of health care services. However, traditional primary care has been criticized for not centring the needs and preferences of people with MM themselves. Our aim was to conduct a review that centred on the perspective of people with MM in multiple ways, including having patient partners co-lead the design, conduct and reporting of findings, and focusing on literature that reported the perspective of people with MM, irrespective of it being experimental or nonexperimental.
We searched for published literature in CINAHL with Full Text (EBSCOhost) and MEDLINE All (Ovid). Findings from experimental and nonexperimental studies were integrated into collaboration with patient partners.
Twenty-nine articles were included in the review. Findings are described in five categories: (1) Care that is tailored to my unique situation; (2) meaningful inclusion in the team; (3) a healthcare team that is ready and able to address my complex needs; (4) supportive relationships and (5) access when and where I need it.
This review supports a reorientation of primary care systems to better reflect the experiences and perspectives of people with MM. This can be accomplished by involving patient partners in the design and evaluation of primary care services and incentivizing collaboration among health and social supports and services for people with MM.
Patient partners were involved in the design and conduct of this review, and in the preparation of the manuscript. Their involvement is further elucidated in the manuscript text.
提高患有多种慢性或进行性疾病的人群的医疗保健质量越来越受到关注,尤其是由于患有多种疾病(MM)的人数不断增加,以及对医疗保健系统可持续性的担忧。初级保健已被推广为支持患有 MM 的人群的重要资源,以帮助他们在患病的情况下过上良好的生活,并防止不必要地使用医疗保健服务。然而,传统的初级保健因其未能满足 MM 患者自身的需求和偏好而受到批评。我们的目的是进行一次综述,该综述从多个方面以 MM 患者为中心,包括让患者合作伙伴共同领导设计、进行和报告研究结果,并关注报告 MM 患者观点的文献,无论其是否为实验性或非实验性研究。
我们在 EBSCOhost 的 CINAHL with Full Text 和 Ovid 的 MEDLINE All 中搜索已发表的文献。实验性和非实验性研究的结果与患者合作伙伴合作进行整合。
综述共纳入 29 篇文章。研究结果描述为五个类别:(1)针对我独特情况的个性化护理;(2)在团队中有意义的参与;(3)一支随时准备并能够满足我复杂需求的医疗保健团队;(4)支持性的关系;以及(5)在我需要时的便捷获取。
本综述支持对初级保健系统进行重新定位,以更好地反映 MM 患者的体验和观点。这可以通过让患者合作伙伴参与初级保健服务的设计和评估,并激励医疗保健和社会支持为 MM 患者提供的资源和服务之间的合作来实现。
患者合作伙伴参与了本综述的设计和实施,并参与了手稿的准备。他们的参与情况在手稿文本中进一步阐述。