Kourti Marianthi, MacLeod Andrea
School of Education, University of Birmingham, Birmingham, United Kingdom.
University of Birmingham, Birmingham, United Kingdom.
Autism Adulthood. 2019 Mar 1;1(1):52-59. doi: 10.1089/aut.2018.0001. Epub 2019 Mar 11.
This article addresses a gap in current research by considering perceptions of gender within autistic adults raised as girls.
We report on an online focus group, in which 21 individuals who had been raised as girls discussed their gender identities. This discussion was part of a larger study, involving 43 participants from eight countries. We used an emancipatory approach wherein participants set their own agenda, thereby highlighting directly that gender identity was significant for them. The discussion was open for 2 weeks, after which the transcript was analyzed using Applied Thematic Analysis.
Participants reported not identifying with typical presentations of the female gender for a variety of reasons, linked both to autism and to sociocultural expectations. Participants described childhoods of being a tomboy or wanting to be a boy, having difficulties conforming to gender-based social expectations and powerful identifications with their personal interests.
Consideration is given to the ways in which autistic individuals conform to, or resist, gendered roles, as well as the implications for identity formation within autistic individuals raised as girls. The innovative emancipatory design proved effective in giving voice to a group who have had little presence within the academic and medical communities and, through its use of online platforms, in engaging a large and internationally based participant sample. This article highlights both the importance of approaching autism from an intersectional perspective that takes greater account of context, and the unique contributions that autistic individuals can make to current understandings within autism research.
This article tries to look at a new part of autism research. It reports on what autistic adults who were raised as girls say about their feelings in relation to their gender-whether they feel more like typical women, more like typical men, or feel differently to both. The research used online discussion groups. Forty-three individuals who had been raised as girls chose to join the group and be part of the research. Participants from eight countries decided what they would talk about. This means that they chose the topic of gender identity as one that was important to them. We analyzed the comments that people made in the discussion about gender. Most said that they did not feel like they were similar to typical women and they gave different reasons for this. Some thought it was because they were autistic and some thought it was to do with people around them putting pressure on them to be more "girly." Participants often said they had been tomboys or wanted to be a boy growing up and their personal interests were very important to them. The discussion looks at how autistic people are sometimes forced to act in certain ways to fit in, and how this can make them feel confused and depressed. The research design was led by the participants and this meant that a group who have rarely been asked their opinion were able to have a say. Because the research was all online, the participant group could be larger than usual and came from all over the world. This article shows that it is important to understand a person's environment, to really understand how autism affects them. It also shows that autistic people can give important information that helps others understand them better, and the only way to get this type of information is to ask autistic people.
本文通过研究被当作女孩抚养长大的自闭症成年患者对性别的认知,填补了当前研究中的一项空白。
我们报告了一次在线焦点小组讨论,21名被当作女孩抚养长大的个体参与讨论了他们的性别认同。此次讨论是一项更大规模研究的一部分,该研究涉及来自八个国家的43名参与者。我们采用了一种赋权方法,让参与者自行设定议程,从而直接突出性别认同对他们的重要性。讨论开放了两周,之后使用应用主题分析法对文字记录进行了分析。
参与者表示,由于各种与自闭症及社会文化期望相关的原因,他们无法认同女性的典型表现。参与者描述了自己童年时像个假小子或想成为男孩,难以符合基于性别的社会期望,以及强烈认同个人兴趣的经历。
本文探讨了自闭症个体顺应或抗拒性别角色的方式,以及对被当作女孩抚养长大的自闭症个体身份形成的影响。这种创新的赋权设计在让一个在学术和医学界几乎没有发言权的群体发出声音方面被证明是有效的,并且通过使用在线平台,吸引了大量来自国际的参与者样本。本文强调了从更能考虑背景的交叉视角研究自闭症的重要性,以及自闭症个体对自闭症研究当前理解的独特贡献。
本文试图探讨自闭症研究的一个新领域。它报告了被当作女孩抚养长大的自闭症成年患者对自己性别感受的看法——他们是否感觉更像典型女性、更像典型男性,或者感觉与两者都不同。该研究使用了在线讨论小组。43名被当作女孩抚养长大的个体选择加入该小组并参与研究。来自八个国家的参与者决定他们要谈论的内容。这意味着他们选择了性别认同这个对他们很重要的话题。我们分析了人们在讨论中关于性别的评论。大多数人表示他们觉得自己与典型女性不同,并给出了不同的原因。一些人认为是因为他们患有自闭症,一些人认为是周围的人给他们施加压力,让他们更“女性化”。参与者经常说他们在成长过程中是假小子或想成为男孩,个人兴趣对他们非常重要。该讨论探讨了自闭症患者有时如何被迫以特定方式行事以融入其中,以及这如何让他们感到困惑和沮丧。研究设计由参与者主导,这意味着一个很少被征求意见的群体能够发表意见。由于研究完全在线进行,参与者群体可能比平时更大,并且来自世界各地。本文表明,了解一个人的环境对于真正理解自闭症如何影响他们很重要。它还表明,自闭症患者可以提供重要信息,帮助他人更好地理解他们,而获取这类信息的唯一方法就是询问自闭症患者。