探讨肺动脉高压患者的体力活动知识、偏好和支持需求。
Exploration of physical activity knowledge, preferences and support needs among pulmonary hypertension patients.
机构信息
School of Health & Human Performance, Dublin City University, Dublin, Ireland.
Department of Sport & Exercise Science, Waterford Institute of Technology, Waterford City, Ireland.
出版信息
PLoS One. 2023 Jan 18;18(1):e0277696. doi: 10.1371/journal.pone.0277696. eCollection 2023.
OBJECTIVE
Physical activity (PA) is an established adjunct therapy for pulmonary hypertension (PH) patients to mitigate PH symptoms and improve quality of life. However, PA engagement within this population remains low. This study investigated PH patients' knowledge of PA, recalled advice, exercise preferences and PA support needs.
METHODS
Semi-structured interviews were conducted with 19 adults (mean age 50 years; SD ±12 years) diagnosed with PH, living in Ireland. Interview scripts were digitally recorded and transcribed verbatim. Thematic analysis was used to analyse the data.
RESULTS
Four key themes were identified: Lack of PA knowledge; exercise setting preference; accountability and monitoring; and clinician delivered PA information and guidance.
CONCLUSION
This study found that PH clinicians provide suboptimal PA advice, yet patients desired clinician-delivered PA guidance. Home-based exercise was preferred with monitoring and external accountability deemed as important to facilitate sustained engagement.
PRACTICE IMPLICATIONS
PH clinicians are well positioned to play a critical role in assisting and empowering PH patients to engage in PA. Providing training and education to PH clinicians regarding exercise prescription may be beneficial. Further research is needed to evaluate the feasibility and efficacy of home-based exercise interventions to improve quality of life and physical activity in PH.
目的
体力活动（PA）是肺高血压（PH）患者的一种既定辅助治疗方法，可减轻 PH 症状并提高生活质量。然而，该人群的 PA 参与度仍然较低。本研究调查了 PH 患者对 PA 的了解程度、对建议的回忆、锻炼偏好和 PA 支持需求。
方法
对 19 名居住在爱尔兰的被诊断为 PH 的成年人（平均年龄 50 岁；SD ±12 岁）进行了半结构化访谈。采访脚本被数字记录并逐字转录。使用主题分析对数据进行分析。
结果
确定了四个主要主题：缺乏 PA 知识；锻炼环境偏好；问责制和监测；以及临床医生提供的 PA 信息和指导。
结论
这项研究发现，PH 临床医生提供的 PA 建议并不理想，但患者希望临床医生提供 PA 指导。他们更喜欢在家中进行锻炼，并认为监测和外部问责制对于促进持续参与非常重要。
实践意义
PH 临床医生在帮助和赋予 PH 患者进行 PA 方面处于有利地位。为 PH 临床医生提供有关运动处方的培训和教育可能是有益的。需要进一步研究评估家庭锻炼干预措施的可行性和有效性，以提高 PH 患者的生活质量和体力活动水平。
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