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为教练在线和社区健康 (COACH) 项目的发展提供信息:一项对患有严重精神疾病的会所成员的定性研究。

Informing the development of the coaching online and community health (COACH) program: a qualitative study of clubhouse members living with serious mental illness.

机构信息

Department of Global Health and Social Medicine, Harvard Medical School, Boston, MA 02115, USA.

Fountain House, New York, NY 10036, USA.

出版信息

Transl Behav Med. 2023 May 13;13(5):343-353. doi: 10.1093/tbm/ibad001.

Abstract

Health and wellness interventions addressing risk factors for early mortality among individuals with serious mental illness have demonstrated success and can be further augmented with digital technology. These programs may be suitable for delivery in psychosocial rehabilitation clubhouses, especially given many services have transitioned to digital platforms during the pandemic. This qualitative study aimed to: (a) explore clubhouse members' experiences engaging with the virtual clubhouse platform, and their preferences for accessing digital wellness and health promotion content; and, (b) gauge members' interest in an online peer-driven lifestyle intervention and their suggestions for program design. This study was guided by a community-based participatory action research framework. Ten focus groups were conducted with clubhouse members. Focus groups were coded and analyzed thematically by trained clubhouse members and the research team. Thirty-three members participated in the focus groups. Participants expressed the importance of having technical support from staff; that one-on-one support and consistent communication are important to keep them engaged in health and wellness programming; and described mixed views about use of the virtual platform, but generally were open to engaging in lifestyle intervention programming virtually. Participants who joined the clubhouse during the pandemic expressed feeling overwhelmed by in-person gatherings, and were especially interested in opportunities for remote participation. This study can inform health and wellness programming for delivery on the virtual clubhouse platform for members. The taxonomy of codes, created to generate a framework with recommendations, will inform the design of a virtual health and wellness intervention.

摘要

健康和福利干预措施针对严重精神疾病患者的早期死亡风险因素取得了成功,并且可以通过数字技术进一步增强。这些计划可能适合在心理社会康复会所中实施,特别是考虑到许多服务在大流行期间已经过渡到数字平台。这项定性研究旨在:(a) 探讨会所成员参与虚拟会所平台的体验,以及他们对获取数字健康和促进健康内容的偏好;以及,(b) 衡量成员对在线同伴驱动的生活方式干预的兴趣以及对方案设计的建议。本研究以社区为基础的参与式行动研究框架为指导。与会所成员进行了 10 次焦点小组讨论。经过培训的会所成员和研究团队对焦点小组进行了编码和主题分析。33 名成员参加了焦点小组。参与者表示需要工作人员提供技术支持;一对一的支持和持续的沟通对保持他们参与健康和福利计划很重要;并对虚拟平台的使用有不同的看法,但普遍愿意在虚拟环境中参与生活方式干预计划。在大流行期间加入会所的参与者表示,他们对面对面的聚会感到不知所措,特别有兴趣远程参与的机会。本研究可为在虚拟会所平台上为会员提供健康和福利计划提供信息。为生成框架而创建的代码分类法将为虚拟健康和福利干预措施的设计提供信息。

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