Huynh Thi N T, Hartel Gunter, Janda Monika, Wyld David, Merrett Neil, Gooden Helen, Neale Rachel E, Beesley Vanessa L
Population Health Department, QIMR Berghofer Medical Research Institute, Brisbane, QLD 4006, Australia.
Faculty of Medicine, The University of Queensland, Brisbane, QLD 4006, Australia.
Cancers (Basel). 2023 Nov 7;15(22):5307. doi: 10.3390/cancers15225307.
Pancreatic cancer has one of the lowest survival rates, and patients experience debilitating symptoms. Family carers provide essential daily care. This study determined the prevalence of and risk factors for unmet supportive care needs among carers for pancreatic cancer patients and examined which carer needs were associated with anxiety and depression in carers and patients. Eighty-four pancreatic cancer patients and their carers were recruited. The carers completed a needs survey (SCNS-P&C). Both carers and patients completed the Hospital Anxiety and Depression Scale. Log binomial regression was used to identify associations between carer needs and anxiety and depression among carers and patients. The top 10 moderate-to-high unmet needs reported by ≥28% of carers were related to healthcare (e.g., discussing concerns with doctors) and information need domains (e.g., information about a patient's physical needs), plus one other item related to hospital parking. Being male or caring for a patient within 4 months of their diagnosis were associated with greater unmet needs. Some unmet needs, including 'accessing information about treatments' and 'being involved in patient care', were associated with both carers and patients having anxiety and depression. Carers should be involved in health care consultations and provided with information and opportunities to discuss concerns.
胰腺癌是生存率最低的癌症之一,患者会出现使人虚弱的症状。家庭护理人员提供基本的日常护理。本研究确定了胰腺癌患者护理人员中未满足的支持性护理需求的患病率和风险因素,并研究了哪些护理人员的需求与护理人员及患者的焦虑和抑郁相关。招募了84名胰腺癌患者及其护理人员。护理人员完成了一项需求调查(SCNS-P&C)。护理人员和患者均完成了医院焦虑抑郁量表。采用对数二项回归分析来确定护理人员需求与护理人员及患者的焦虑和抑郁之间的关联。≥28%的护理人员报告的前10项中度至高度未满足需求与医疗保健(如与医生讨论担忧)和信息需求领域(如患者身体需求的信息)相关,另外还有一项与医院停车有关。男性护理人员或在患者诊断后4个月内进行护理与更高的未满足需求相关。一些未满足的需求,包括“获取治疗信息”和“参与患者护理”,与护理人员和患者的焦虑和抑郁都有关。应让护理人员参与医疗保健咨询,并为其提供讨论担忧的信息和机会。