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纤维肌痛患者中移动应用程序的使用情况:一项横断面调查。

Mobile App Use among Persons with Fibromyalgia: A Cross-sectional Survey.

机构信息

School of Information, University of Texas at Austin, Austin, Texas.

Department of Biomedical Informatics and Medical Education, University of Washington, Seattle, Washington.

出版信息

J Pain. 2024 Aug;25(8):104515. doi: 10.1016/j.jpain.2024.03.011. Epub 2024 Mar 24.

Abstract

Persons with fibromyalgia experience a diverse set of symptoms. Recommendations for management generally focus on multidisciplinary approaches involving multiple modalities. Mobile apps can be an essential component for self-management, yet little is known about how persons with fibromyalgia use mobile apps for health-related purposes. A cross-sectional survey (N = 663) was conducted to understand the real-world use of apps among persons with fibromyalgia. The survey included 2 main foci: 1) eHealth literacy and use of information sources, and 2) mobile app use patterns and preferences for health-related purposes, including the types of apps used and usage characteristics of apps currently in use, as well as those that had been discontinued. Respondents' average eHealth literacy as measured by eHealth Literacy Scale (eHEALS) was 31.4 (SD = 7.1), and they utilized diverse information sources. Approximately two-thirds of the sample used mobile apps; the remaining one-third did not. Diverse health management needs were represented in the apps reported, including scheduling/time management, notetaking, fitness, and wellness. Compared to apps that had been discontinued, participants rated apps that they still used higher in terms of ease of use and used them more frequently. Reasons for discontinuing app use included issues with privacy, the effort required, lack of interest, and lack of perceived quality. Other reasons for app nonuse were lack of awareness and how-to knowledge, indicating that disseminating information about apps and addressing other barriers, such as providing user support, are critical to increasing uptake. These study findings can inform both app design and dissemination. PERSPECTIVE: This article presents how persons with fibromyalgia use mobile apps to manage their health. The findings could inform the development of digital interventions or programs for this population.

摘要

纤维肌痛患者会出现多种症状。管理建议通常侧重于多学科方法,涉及多种方式。移动应用程序可以成为自我管理的重要组成部分,但对于纤维肌痛患者如何使用移动应用程序来进行与健康相关的目的,我们知之甚少。一项横断面调查(N=663)旨在了解纤维肌痛患者在现实生活中使用应用程序的情况。该调查包括 2 个主要焦点:1)电子健康素养和信息来源的使用,2)移动应用程序的使用模式和健康相关目的的偏好,包括使用的应用程序类型和当前使用的应用程序的使用特征,以及已停用的应用程序。受访者的电子健康素养平均由电子健康素养量表(eHEALS)衡量,得分为 31.4(SD=7.1),并使用了多种信息来源。大约三分之二的样本使用移动应用程序;其余三分之一的人则没有。报告的应用程序中反映出各种健康管理需求,包括日程安排/时间管理、笔记记录、健身和健康。与已停用的应用程序相比,参与者对他们仍在使用的应用程序在易用性方面的评价更高,使用频率也更高。停止使用应用程序的原因包括隐私问题、所需的努力、缺乏兴趣和缺乏感知质量。不使用应用程序的其他原因包括缺乏意识和使用知识,这表明传播有关应用程序的信息和解决其他障碍(如提供用户支持)对于提高使用率至关重要。这些研究结果可以为应用程序的设计和传播提供信息。观点:本文介绍了纤维肌痛患者如何使用移动应用程序来管理他们的健康。这些发现可以为针对这一人群的数字干预或计划的开发提供信息。

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