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不仅仅是一个变量:自闭症过渡研究中明确关注黑人青年的必要性。

More Than Just a Variable: The Need to Explicitly Focus on Black Youth Within Autism Transitions Research.

作者信息

Roux Anne M, Voltaire Samuelle, Steinberg Hillary, Williams Ed-Dee, Anderson Kristy A, Hutson Turea M, Shea Lindsay L

机构信息

A.J. Drexel Autism Institute, Drexel University, Philadelphia, Pennsylvania, USA.

School of Social Work, Boston College, Boston, Massachusetts, USA.

出版信息

Autism Adulthood. 2024 Jun 17;6(2):119-127. doi: 10.1089/aut.2023.0041. eCollection 2024 Jun.

Abstract

Little evidence is available to provide context for understanding the experiences of parents and youth from historically marginalized groups as they age into adulthood, especially in regard to the transition experiences of Black autistic transition-age youth and their family members. This commentary builds upon recent publications that inform intersectional understandings of Black autistic experiences in America, and outlines research recommendations to better address the specific needs of Black autistic transition-age youth. Given the noted deficits in transition research and the transition process in regard to the experiences of Black autistic youth, we provide recommendations for improving autism transition research. We propose changes that are necessary to achieve equitable research processes, which could inform the design of targeted interventions to improve transition experiences for Black autistic youth.

摘要

几乎没有证据能为理解历史上被边缘化群体的父母和年轻人步入成年期的经历提供背景信息,尤其是关于黑人自闭症过渡年龄青年及其家庭成员的过渡经历。本评论基于最近的出版物,这些出版物为美国黑人自闭症经历的交叉性理解提供了信息,并概述了研究建议,以更好地满足黑人自闭症过渡年龄青年的特定需求。鉴于在黑人自闭症青年经历方面的过渡研究和过渡过程存在明显不足,我们提供了改进自闭症过渡研究的建议。我们提出了实现公平研究过程所需的变革,这可为设计有针对性的干预措施提供参考,以改善黑人自闭症青年的过渡经历。

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Examination of Race and Autism Intersectionality Among African American/Black Young Adults.
Autism Adulthood. 2022 Dec 1;4(4):306-314. doi: 10.1089/aut.2021.0091. Epub 2022 Dec 13.
5
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Autism Adulthood. 2022 Dec 1;4(4):281-289. doi: 10.1089/aut.2021.0014. Epub 2022 Dec 13.
6
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Autism Adulthood. 2022 Dec 1;4(4):271-280. doi: 10.1089/aut.2021.0086. Epub 2022 Dec 13.
8
Perspective: The role of diversity advisory boards in autism research.
Autism. 2023 Apr;27(3):864-869. doi: 10.1177/13623613221133633. Epub 2022 Nov 7.
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