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对痴呆症患者家庭照顾者同伴支持的最新叙述性综述:从面对面到数字化提供。

A state-of-the-art narrative review of peer support for family caregivers of people with dementia: from in-person to digital delivery.

作者信息

Cui Sunny, Crowe-Cumella Hannah, Fortuna Karen L, Jain Felipe A

机构信息

Department of Psychiatry, Geisel School of Medicine at Dartmouth, Hanover, NH, USA.

Department of Social Work, Salem State University, Salem, MA, USA.

出版信息

Mhealth. 2024 Dec 15;11:9. doi: 10.21037/mhealth-24-19. eCollection 2025.

Abstract

BACKGROUND AND OBJECTIVE

This narrative review examines peer support services for caregivers of people with dementia, focusing on mHealth interventions. Family caregivers of people with dementia experience high rates of stress and depression, burnout, and physical health decline. Traditionally, in-person peer support has been a bedrock of family caregiver programs. However, in-person peer support interventions are not accessible or acceptable for many caregivers. mHealth, or mobile health, refers to the use of mobile devices and technology to deliver health-related services or education. Several digital mHealth innovations have been developed to facilitate caregiver peer support, but the evidence for these approaches is unclear. We aimed to summarize the evidence on digital mHealth peer support interventions for family caregivers of persons living with dementia.

METHODS

A search was conducted using PubMed and Google Scholar for studies published between January 2007 and January 2024, with keywords such as "caregiver", "peer support", "dementia", and "digital". Two reviewers independently screened and selected relevant studies, resolving discrepancies through consensus.

KEY CONTENT AND FINDINGS

Many studies show a positive correlation between group and one-on-one peer support interventions and psychological well-being, personal growth, and the development of coping skills. There were inconclusive results regarding the relationship between peer support interventions and clinical outcomes. Emerging digital platforms have demonstrated usability and acceptability, reducing caregiver depression and stress. However, access disparities related to digital literacy and socioeconomic factors remain significant barriers.

CONCLUSIONS

Digital peer support for informal caregivers of persons with dementia shows promising evidence for improving caregivers' support and psychological health. As the science of digital peer support advances, mHealth delivery of caregiver peer support interventions will likely have an increasingly important role in supporting caregivers' mental health and well-being.

摘要

背景与目的

本叙述性综述探讨了针对痴呆症患者照料者的同伴支持服务,重点关注移动健康干预措施。痴呆症患者的家庭照料者面临着高压力、高抑郁率、职业倦怠以及身体健康下降等问题。传统上,面对面的同伴支持一直是家庭照料者项目的基石。然而,许多照料者无法获得或接受面对面的同伴支持干预措施。移动健康(mHealth)是指利用移动设备和技术提供与健康相关的服务或教育。已经开发了几种数字移动健康创新措施来促进照料者的同伴支持,但这些方法的证据尚不清楚。我们旨在总结关于数字移动健康同伴支持干预措施对痴呆症患者家庭照料者影响的证据。

方法

使用PubMed和谷歌学术搜索2007年1月至2024年1月发表的研究,关键词包括“照料者”“同伴支持”“痴呆症”和“数字”。两名评审员独立筛选并选择相关研究,通过协商解决分歧。

关键内容与发现

许多研究表明,团体和一对一的同伴支持干预措施与心理健康、个人成长以及应对技能的发展之间存在正相关。关于同伴支持干预措施与临床结果之间的关系,结果尚无定论。新兴的数字平台已显示出可用性和可接受性,可减轻照料者的抑郁和压力。然而,与数字素养和社会经济因素相关的获取差距仍然是重大障碍。

结论

对痴呆症患者非正式照料者的数字同伴支持显示出改善照料者支持和心理健康的有力证据。随着数字同伴支持科学的发展,通过移动健康提供照料者同伴支持干预措施可能在支持照料者的心理健康和幸福方面发挥越来越重要的作用。

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