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新冠疫情期间影响原发性青光眼患者治疗延迟的社会、个人及医学因素:一项定性访谈研究

Social, personal and medical factors influencing treatment delay for patients with primary glaucoma during the COVID-19 pandemic: a qualitative interview study.

作者信息

Liu Hua, Sun Lina, Li Yan, Liu Wei, Bu Shaochong, Huang Shaohui, Hu Dan, Yan Jing, Bian Tong, Li Shuang, Li Qian, Shi Jingyi, Zhou Ping, Xing Yan

机构信息

Tianjin Medical University Eye Hospital, Tianjin, China

Tianjin Medical University Eye Hospital, Tianjin, China.

出版信息

BMJ Open. 2025 Mar 29;15(3):e096469. doi: 10.1136/bmjopen-2024-096469.

Abstract

BACKGROUND

Primary glaucoma patients faced many difficulties that affected their treatment during the COVID-19 pandemic. Glaucoma treatment often starts with prescription eye-drops. However, delays in ophthalmic therapy often occur due to poor awareness of the dangers of glaucoma, which subsequently leads to irreversible visual field defects and eventual blindness.

OBJECTIVE

This study aimed to explore the social, personal and medical factors that contributed to barriers in the treatment of primary glaucoma during the COVID-19 pandemic, with the overarching goal of providing insights to develop measures that can identify the barriers of the treatment process and prevent consequent adverse outcomes.

METHODS

We adopted a phenomenological approach and used purposive sampling to recruit 122 patients into our study. Face-to-face, semistructured, one-on-one interviews were conducted in a private office. The data were analysed using Colaizzi's seven-step method. In cases where classification was difficult, consensus was reached among the three researchers who formed the core assessment team.

RESULTS

A total of 122 glaucoma patients experienced delayed pharmaceutical treatment during the outbreak. Delays were longer among females and patients over 75 years old, highlighting that treatment delays were a significant issue for glaucoma patients during the COVID-19 pandemic, particularly for older females. Coding of the transcripts yielded three themes (eight subthemes): (1) the impact of social support on glaucoma pharmaceutical treatment: (a) the inability to seek pharmaceutical treatment alone and (b) online reservation and payment requirements; (2) the impact of personal reasons on glaucoma pharmaceutical treatment: (c) fear of being infected with COVID-19, (d) being infected with COVID-19 or coming into contact with COVID-19 patients, (e) being busy with work or life; (3) the impact of medical resources on glaucoma pharmaceutical treatment: (f) abnormal diagnosis and treatment processes, (g) insufficient medical manpower and (h) insufficient communication from medical staff.

CONCLUSIONS

To prevent medication delays and potential irreversible damage to the visual field in primary glaucoma patients during health crises, it is essential to further explore personalised strategies for coping with the impact of pandemics. Special attention should be given to glaucoma patients facing significant life burdens, such as the elderly and females, and efforts should be made to increase their awareness of the risks of glaucoma. Future studies could explore the feasibility of providing more support to glaucoma patients, such as online payment and appointment scheduling options, to reduce delays and alleviate patient anxiety.

摘要

背景

在新冠疫情期间,原发性青光眼患者在治疗上面临诸多困难。青光眼治疗通常始于开具眼药水处方。然而,由于对青光眼危害的认识不足,眼科治疗常常出现延误,进而导致不可逆转的视野缺损,最终失明。

目的

本研究旨在探讨在新冠疫情期间导致原发性青光眼治疗障碍的社会、个人和医疗因素,总体目标是提供见解,以制定能够识别治疗过程中的障碍并预防随之而来的不良后果的措施。

方法

我们采用现象学方法,通过目的抽样招募了122名患者参与研究。在私人办公室进行面对面、半结构化、一对一访谈。数据采用Colaizzi七步法进行分析。在难以分类的情况下,由组成核心评估团队的三位研究人员达成共识。

结果

在疫情爆发期间,共有122名青光眼患者的药物治疗出现延误。女性患者和75岁以上患者的延误时间更长,这突出表明在新冠疫情期间,治疗延误对青光眼患者来说是一个重大问题,尤其是老年女性。对访谈记录进行编码产生了三个主题(八个子主题):(1)社会支持对青光眼药物治疗的影响:(a)无法独自寻求药物治疗以及(b)在线预约和支付要求;(2)个人原因对青光眼药物治疗的影响:(c)对感染新冠病毒的恐惧、(d)感染新冠病毒或接触新冠患者、(e)忙于工作或生活;(3)医疗资源对青光眼药物治疗的影响:(f)诊断和治疗过程异常、(g)医疗人力不足以及(h)医务人员沟通不足。

结论

为防止在健康危机期间原发性青光眼患者出现用药延误以及对视野造成潜在的不可逆转损害,进一步探索应对疫情影响的个性化策略至关重要。应特别关注面临重大生活负担的青光眼患者,如老年人和女性,并努力提高他们对青光眼风险的认识。未来的研究可以探索为青光眼患者提供更多支持的可行性,如在线支付和预约安排选项,以减少延误并缓解患者焦虑。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9543/11956386/96d3aa6e1b75/bmjopen-15-3-g001.jpg

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