针对自闭症谱系障碍儿童家长心理健康的数字健康干预措施：一项范围综述方案
Digital Health Interventions Targeting Psychological Health in Parents of Children With Autism Spectrum Disorder: Protocol for a Scoping Review.
作者信息
Ji Binbin, Batubara Intan Maharani Sulistyawati, Batten Janene, Peng Xinyi, Chen Sanmei, Ni Zhao
机构信息
School of Nursing, Hunan University of Chinese Medicine, Changsha, China.
School of Nursing, Yale University, New Haven, CT, United States.
出版信息
JMIR Res Protoc. 2025 Jun 4;14:e68677. doi: 10.2196/68677.
BACKGROUND
Autism spectrum disorder (ASD) is a complex, incurable condition requiring lifelong care, often placing significant psychological strain on parents and emerging as a public health concern. While various interventions exist to enhance the psychological health of parents, the role of digital health interventions (DHIs) in this context remains underexplored.
OBJECTIVE
This scoping review aims to systematically assess the availability of DHIs targeting the psychological health of parents of children with ASD and evaluate the effectiveness of these interventions in improving parental psychological health.
METHODS
The review will include English-language studies published from inception to June 25, 2024, focusing on DHIs aimed at improving the psychological health of parents of children with ASD. Eligible studies will involve parents of children with ASD less than the age of 18 years, across various settings, and assess psychological health outcomes. A comprehensive search will be conducted across six databases: (1) CINAHL, (2) Ovid EMBASE, (3) Ovid Global Health, (4) Ovid MEDLINE, (5) Ovid PsycINFO, and (6) Web of Science. Studies will be screened and selected based on predefined eligibility criteria. Data extraction will include publication details, study design, participants' characteristics, intervention specifics, comparisons, psychological outcomes, and key findings. Results will be synthesized using descriptive statistics, charts, and narrative analysis.
RESULTS
The initial keyword-based search, completed in June 2024, identified 5825 records, which were subsequently screened and analyzed. Screening and evidence synthesis were finalized in winter 2024, and the completed scoping review was submitted in December 2024.
CONCLUSIONS
This study will provide a comprehensive overview of commonly used DHIs for supporting the psychological health of parents of children with ASD and their effectiveness. The findings will help identify research gaps, inform future studies and funding priorities, and contribute to the development of practice guidelines to enhance parental psychological health.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/68677.
背景
自闭症谱系障碍（ASD）是一种复杂的、无法治愈的疾病，需要终身护理，这常常给家长带来巨大的心理压力，并成为一个公共卫生问题。虽然有各种干预措施来促进家长的心理健康，但数字健康干预（DHI）在这方面的作用仍未得到充分探索。
目的
本范围综述旨在系统评估针对ASD儿童家长心理健康的DHI的可用性，并评估这些干预措施在改善家长心理健康方面的有效性。
方法
该综述将纳入从开始到2024年6月25日发表的英文研究，重点关注旨在改善ASD儿童家长心理健康的DHI。符合条件的研究将涉及18岁以下ASD儿童的家长，涵盖各种环境，并评估心理健康结果。将在六个数据库中进行全面检索：（1）CINAHL，（2）Ovid EMBASE，（3）Ovid全球健康，（4）Ovid MEDLINE，（5）Ovid PsycINFO，以及（6）科学引文索引。将根据预先确定的纳入标准对研究进行筛选和选择。数据提取将包括出版细节、研究设计、参与者特征、干预细节、比较、心理结果和主要发现。结果将使用描述性统计、图表和叙述性分析进行综合。
结果
2024年6月完成的基于关键词的初步检索共识别出5825条记录，随后对其进行了筛选和分析。筛选和证据综合于2024年冬季完成，完整的范围综述于2024年12月提交。
结论
本研究将全面概述用于支持ASD儿童家长心理健康的常用DHI及其有效性。研究结果将有助于识别研究空白，为未来研究和资金优先事项提供信息，并有助于制定实践指南以促进家长心理健康。
国际注册报告识别号（IRRID）：DERR1-10.2196/68677。
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