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数字肺康复应用程序作为慢性肺病患者常规护理的辅助手段或替代方案的可接受性:对患者观点和体验的定性研究

Acceptability of a digital pulmonary rehabilitation app as an adjunct or alternative to usual care for people with chronic lung diseases: A qualitative study of patients' views and experiences.

作者信息

Knight-Davidson Pamela, Meshe Oluwasomi Festus, Jenkins Timothy O, Edwards George D, Patel Suhani, Moore Carmel, Hayden Karen, Ball Graham, Ingram Karen A, Nolan Claire M, Man William D C

机构信息

School of Midwifery and Community Health, Faculty of Health, Medicine, and Social Care, Anglia Ruskin University, Cambridge, UK.

School of Nursing, Faculty of Health, Medicine, and Social Care, Anglia Ruskin University, Cambridge, UK.

出版信息

Chron Respir Dis. 2025 Jan-Dec;22:14799731251365632. doi: 10.1177/14799731251365632. Epub 2025 Aug 13.

Abstract

BackgroundCentre-PR may not be accessible for people living distant from PR centres. Remote digital PR may have equivalent benefits to centre-PR; however, previous trials were potentially biased towards digitally literate patients, and largely excluded participants with a preference for centre-PR. There is limited data on the real-world implementation of, and acceptability for, Digital-PR alone or as an adjunct to other models of PR.ObjectivesTo gather patients' views about the acceptability of Active+me REMOTE, a digital pulmonary rehabilitation app (Digital-PR).MethodsA qualitative exploratory study using semi-structured interviews with a subset (n = 15) of patients in a mixed method, feasibility study of a hybrid pulmonary rehabilitation, blending Digital-PR with other models of PR. Transcribed data were coded descriptively using Braun and Clarkes' methodology, data interpretation was facilitated through a Miro virtual whiteboard.ResultsThere was appreciation for the concept of Digital-PR, indicated by positive responses in the domains of "friends and family recommendation," "intention to continue using the app," and "privacy concerns." Benefits were reported by two participants who had declined centre-based PR. The app was rated low regarding user-friendliness. Challenges in understanding/using the app and a perception of challenges for others were reported and were associated with poor digital literacy and tech savviness. High digital skills did not predict a favourable assessment of the app as user-friendly.DiscussionWhilst there was a general appreciation for the concept of digital PR as an adjunct or alternative to traditional centre-based PR, the app did not appear to be user-friendly, nor acceptable to people with low digital literacy. The findings have implications for the wider routine implementation of Digital-PR.

摘要

背景

对于居住在远离肺康复(PR)中心的人来说,可能无法获得中心型肺康复服务。远程数字肺康复可能与中心型肺康复具有同等益处;然而,先前的试验可能对具备数字素养的患者存在偏向性,并且在很大程度上排除了偏爱中心型肺康复的参与者。关于单独使用数字肺康复或作为其他肺康复模式的辅助手段在现实世界中的实施情况及可接受性的数据有限。

目的

收集患者对一款数字肺康复应用程序(数字肺康复)Active+me REMOTE可接受性的看法。

方法

在一项混合方法的可行性研究中,对部分(n = 15)患者进行半结构化访谈,该研究是关于一种混合肺康复模式,将数字肺康复与其他肺康复模式相结合。转录的数据使用布劳恩和克拉克的方法进行描述性编码,通过Miro虚拟白板辅助进行数据解读。

结果

在“朋友和家人推荐”“继续使用该应用程序的意向”以及“隐私担忧”等方面的积极回应表明,患者对数字肺康复的概念表示赞赏。两名拒绝接受基于中心的肺康复的参与者报告了其益处。该应用程序在用户友好性方面的评分较低。有报告称在理解/使用该应用程序方面存在挑战以及认为对其他人来说也有挑战,这与数字素养和技术能力较差有关。高数字技能并不能预测对该应用程序用户友好性的良好评价。

讨论

虽然总体上对数字肺康复作为传统中心型肺康复的辅助手段或替代方法的概念表示赞赏,但该应用程序似乎并不用户友好,对于数字素养较低的人来说也不可接受。这些发现对数字肺康复更广泛的常规实施具有启示意义。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/27c7/12351072/bfaa8937d1a7/10.1177_14799731251365632-fig1.jpg

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