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参加护士主导项目的慢性疼痛患者的经历、信念和价值观:一项描述性现象学定性研究

Experiences, Beliefs, and Values of Patients with Chronic Pain Who Attended a Nurse-Led Program: A Descriptive Phenomenological Qualitative Study.

作者信息

Jimenez Martin Jose Manuel, Morales Fernandez Angelines, Vergara Romero Manuel, Morales Asencio Jose Miguel

机构信息

Programa de Doctorado en Ciencias de la Salud, Universidad de Malaga, 29071 Malaga, Spain.

Hospital Universitario Costa del Sol, 29603 Marbella, Spain.

出版信息

Nurs Rep. 2025 Jul 25;15(8):269. doi: 10.3390/nursrep15080269.

Abstract

To explore the experiences, beliefs, and values of patients who participated in a two-arm randomized clinical trial assessing a nurse-led intervention program for chronic pain self-management, which demonstrated positive effects on pain reduction, depression, and anxiety, and on health-related quality of life 24 months after completion of the program. Descriptive phenomenological qualitative study. Patients were recruited via telephone, informed about the study, and invited to participate in an individual interview at a place of their choice (hospital or home). All interviews were audiotaped, and an inductive thematic analysis was performed. Seven interviews were carried out between both groups. Six emerging categories were found: effective relationship with the healthcare system, learning to live with pain, family and social support, behaviors regarding pain, resources for self-management, and concomitant determinants. Patients report key aspects that help us to understand the impact of this type of nurse-led group intervention: the intrinsic therapeutic effect of participating in the program itself, the ability to learn to live with pain, the importance of family and social support, the modification of pain-related behaviors, and the identification of resources for self-care. The findings highlight the need for gender-sensitive, individualized care approaches to chronic pain, addressing stigma and social context. Expanding community-based programs and supporting caregivers is essential, as is further research into gender roles, family dynamics, and work-related factors.

摘要

为探究参与一项双臂随机临床试验的患者的经历、信念和价值观,该试验评估了一项由护士主导的慢性疼痛自我管理干预项目,该项目在项目完成24个月后对疼痛减轻、抑郁和焦虑以及与健康相关的生活质量产生了积极影响。描述性现象学定性研究。通过电话招募患者,向其介绍研究情况,并邀请他们在自己选择的地点(医院或家中)参加个人访谈。所有访谈均进行录音,并进行归纳主题分析。两组共进行了七次访谈。发现了六个新出现的类别:与医疗保健系统的有效关系、学会与疼痛共处、家庭和社会支持、与疼痛相关的行为、自我管理资源以及伴随的决定因素。患者报告了有助于我们理解这种由护士主导的小组干预影响的关键方面:参与项目本身的内在治疗效果、学会与疼痛共处的能力、家庭和社会支持的重要性、与疼痛相关行为的改变以及自我护理资源的确定。研究结果强调了对慢性疼痛采取性别敏感、个性化护理方法的必要性,同时要解决耻辱感和社会背景问题。扩大基于社区的项目并支持护理人员至关重要,对性别角色、家庭动态和与工作相关因素的进一步研究也同样重要。

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