囊性纤维化患儿健康相关生活质量疾病特异性测量方法的验证
Validation of a disease-specific measure of health-related quality of life for children with cystic fibrosis.
作者信息
Modi Avani C, Quittner Alexandra L
机构信息
Department of Clinical and Health Psychology, University of Florida, Florida 32610, USA.
出版信息
J Pediatr Psychol. 2003 Dec;28(8):535-45. doi: 10.1093/jpepsy/jsg044.
OBJECTIVE
The purpose of the current study was to evaluate the psychometric properties of the Cystic Fibrosis Questionnaire (CFQ)-Child version, a disease-specific health-related quality of life (HRQOL) measure for children with cystic fibrosis (CF).
METHOD
The CFQ was administered to 84 children with CF, ranging in age from 7 to 13 years, and their parents.
RESULTS
Multitrait analyses indicated that a majority of items on the CFQ-Child correlated more highly with their hypothesized scale than a competing scale. Internal consistency coefficients were acceptable for all scales (Cronbach's alpha =.60-.76), with the exception of treatment burden (Cronbach's alpha =.44). Results also suggested strong convergence between child and parent-proxy reports on several scales of the CFQ.
CONCLUSION
Results demonstrated that the CFQ-Child is a reliable and valid measure of HRQOL for children with CF.
目的
本研究旨在评估囊性纤维化问卷（CFQ）儿童版的心理测量特性，这是一种针对囊性纤维化（CF）患儿的特定疾病健康相关生活质量（HRQOL）测量工具。
方法
对84名年龄在7至13岁的CF患儿及其父母进行了CFQ问卷调查。
结果
多特质分析表明，CFQ儿童版上的大多数项目与其假设量表的相关性高于竞争量表。除治疗负担量表（克朗巴哈系数=0.44）外，所有量表的内部一致性系数均可接受（克朗巴哈系数=0.60 - 0.76）。结果还表明，在CFQ的几个量表上，儿童报告与父母代理报告之间具有很强的一致性。
结论
结果表明，CFQ儿童版是一种用于CF患儿的可靠且有效的HRQOL测量工具。
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