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当糖尿病足溃疡导致截肢时:对15名患者生活体验的定性研究

When a diabetic foot ulcer results in amputation: a qualitative study of the lived experience of 15 patients.

作者信息

Foster DeSales, Lauver Lori S

机构信息

Riddle Hospital, Media, PA; email:

College of Nursing, Pennsylvania State University, State College, PA.

出版信息

Ostomy Wound Manage. 2014 Nov;60(11):16-22.

Abstract

Diabetes is a chronic disease that can lead to complications resulting in diabetic foot ulcers (DFUs), foot infections, osteomyelitis, and amputations. Almost 50,000 amputations performed every year in the United States are due to DFUs. A qualitative analysis using Colaizzi's step-by-step approach to phenomenology was conducted to describe the experiences of 15 patients with diabetes living with a foot amputation. Semi-structured interviews were recorded digitally,transcribed, and analyzed. The analysis included reading transcripts multiple times, identifying noteworthy verbatim statements, then abstracting key words and phrases; similar key words and phrases were grouped into a meaning unit. The researchers rereviewed original transcripts, verbatim statements, and extracted key words and phrases and devised meaning units to identify main themes. Rigor in this study was ensured by developing an audit trail that linked the meaning units and themes back to key words and verbatim statements in the original transcripts and then allowing the participant to ensure accuracy of recounted information. Five major themes emerged from the data regarding patient concern about the ability to be productive members of society (i.e., transitioning from having a nonhealing wound to living as a new amputee)--financial burden, powerlessness, social support, placing blame, and uncertainty in one's continued ability--each having implications for health care providers as well as patients. By considering the experience from the patient perspective, health care professionals may be better prepared to discuss patient concerns with follow-up care and day to-day living, especially in getting help with finances. Additional research is needed to uncover models of care that may help these patients remain productive members of society and reduce the burden of amputation on patient quality of life.

摘要

糖尿病是一种慢性疾病,可能导致并发症,引发糖尿病足溃疡(DFU)、足部感染、骨髓炎和截肢。在美国,每年进行的近5万例截肢手术都是由糖尿病足溃疡导致的。采用科莱齐逐步现象学方法进行定性分析,以描述15名足部截肢糖尿病患者的经历。半结构化访谈进行了数字记录、转录和分析。分析包括多次阅读转录本,识别值得注意的逐字陈述,然后提取关键词和短语;将相似的关键词和短语归为一个意义单元。研究人员重新审视原始转录本、逐字陈述,提取关键词和短语并设计意义单元以识别主要主题。通过建立一条审核线索来确保本研究的严谨性,该线索将意义单元和主题与原始转录本中的关键词和逐字陈述联系起来,然后让参与者确保所叙述信息的准确性。从数据中出现了五个主要主题,涉及患者对成为社会有生产力成员的能力的担忧(即从有不愈合伤口过渡到以新截肢者的身份生活)——经济负担、无力感、社会支持、归咎他人以及对自身持续能力的不确定性,每个主题对医疗保健提供者和患者都有影响。通过从患者角度考虑这些经历,医疗保健专业人员可能会更好地准备好与患者讨论后续护理和日常生活方面的担忧,尤其是在获得经济帮助方面。需要进行更多研究以发现可能有助于这些患者保持社会生产力成员身份并减轻截肢对患者生活质量负担的护理模式。

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