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将脊髓损伤自我管理干预措施转化为在线和远程医疗服务:一种社区参与式研究方法。

Translating a spinal cord injury self-management intervention for online and telehealth delivery: A community-engaged research approach.

作者信息

Newman Susan D, Toatley Sherwood L, Rodgers Marka D

机构信息

College of Nursing, Medical University of South Carolina , Charleston , South Carolina , USA.

South Carolina Spinal Cord Injury Association , Columbia , South Carolina , USA.

出版信息

J Spinal Cord Med. 2019 Sep;42(5):595-605. doi: 10.1080/10790268.2018.1518123. Epub 2018 Sep 10.

Abstract

To develop educational content and pilot test the use of tablet computers (iPads), online content management platform (iTunes U) and video conferencing (FaceTime) for delivery of a peer supported, spinal cord injury self-management intervention, using a community-engaged research approach. Cross-sectional convenience sampled pilot study; evaluation using a combination of observation and questionnaires. Community-based. Individuals with SCI ( = 10) recruited from the community. Participants engaged in a hands-on evaluation of the educational content and technology. Usability and acceptability of educational content and technology. Participants were receptive and satisfied with the iPad and iTunes U platform and the video chat experience. Statements by our participants demonstrated a clear preference for interactive and multimedia platforms to promote engagement with educational materials. The use of FaceTime to facilitate contact between the participant and PN demonstrated satisfactory usability and acceptability. The hands-on evaluation process highlighted the need for consideration of connectivity for rural participants and assistive technology needs. Our community-engaged research approach and evaluation processes provided direct user feedback on the online and telehealth implementation of PHOENIX that will guide development of the remaining educational content, and testing of the intervention in a future feasibility trial.

摘要

采用社区参与式研究方法,开发教育内容并进行平板电脑(iPad)、在线内容管理平台(iTunes U)和视频会议(FaceTime)用于提供同伴支持的脊髓损伤自我管理干预措施的试点测试。横断面便利抽样试点研究;采用观察和问卷调查相结合的方式进行评估。以社区为基础。从社区招募了10名脊髓损伤患者。参与者对教育内容和技术进行了实际操作评估。评估教育内容和技术的可用性和可接受性。参与者对iPad和iTunes U平台以及视频聊天体验表示接受和满意。我们参与者的陈述表明,他们明显更喜欢交互式和多媒体平台,以促进与教育材料的互动。使用FaceTime促进参与者与同伴支持者之间的联系,其可用性和可接受性令人满意。实际操作评估过程突出了需要考虑农村参与者的连接性和辅助技术需求。我们的社区参与式研究方法和评估过程为PHOENIX在线和远程医疗实施提供了直接用户反馈,这将指导其余教育内容的开发,并在未来的可行性试验中对干预措施进行测试。

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