社区中的家庭护理：痴呆发病后长达 8 年。
Family caregiving in the community up to 8-years after onset of dementia.
机构信息
Department of Health Services, Policy & Practice, Brown University School of Public Health, Box G-S121-6, 121 S. Main Street, 6th Floor, Providence, RI, 02912, USA.
Providence Veterans Affairs (VA) Medical Center, Center of Innovation in Long Term Services and Supports, Providence, Rhode Island, 02908, USA.
出版信息
BMC Geriatr. 2020 Jun 19;20(1):216. doi: 10.1186/s12877-020-01613-9.
BACKGROUND
Persons with Alzheimer's disease and related dementias (ADRD) receive care from family/friends, but how care changes from the onset of dementia remains less understood.
METHODS
We used the Health and Retirement Study (2002-2012) to identify community-dwelling individuals predicted to have incident ADRD. We investigated the amount of caregiving received for activities of daily living in the 8-years after disease onset.
RESULTS
At incidence (n = 1158), persons with ADRD received 151 h (SD = 231) of caregiving a month, 25 (SD = 26) caregiving days a month and had 1.3 (SD = 1.4) caregivers a month. By 8-years post incidence, 187 (16%) individuals transitioned to a nursing home and 662 (57%) died in the community. Community-dwelling persons with ADRD at 8-years post incidence (n = 30) received 283 h (SD = 257) of caregiving, 38 (SD = 24) caregiving days, and had 2.2 (SD = 1.3) caregivers.
CONCLUSIONS
Community-dwelling persons with ADRD receive a substantial amount of caregiving over the first 8-years after disease onset.
背景
患有阿尔茨海默病和相关痴呆症（ADRD）的人接受家人/朋友的照顾，但从痴呆症发病开始，照顾方式如何变化仍不太清楚。
方法
我们使用健康与退休研究（2002-2012）来确定有预测患有ADRD 的社区居住者。我们研究了发病后 8 年内日常生活活动的照顾量。
结果
在发病时（n=1158），ADRD 患者每月接受 151 小时（SD=231）的护理，每月 25 天（SD=26）接受护理，每月有 1.3 名（SD=1.4）护理人员。在发病后 8 年内，187 人（16%）转为疗养院，662 人（57%）在社区死亡。发病后 8 年仍在社区居住的 ADRD 患者（n=30）接受了 283 小时（SD=257）的护理，38 天（SD=24）的护理，有 2.2 名（SD=1.3）护理人员。
结论
发病后 8 年内，社区居住的 ADRD 患者接受了大量的照顾。
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