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改善囊性纤维化患者身体活动处方的建议:爱尔兰视角

Recommendations to improve physical activity prescription for the cystic fibrosis population: an Irish perspective.

作者信息

Hurley Nicola, Kehoe Bróna, McCaffrey Noel, Redmond Karen, Cullen Lydia, Moyna Niall M

机构信息

School of Health and Human Performance, Dublin City University, Dublin, Ireland.

Department of Sport and Exercise Science, Waterford Institute of Technology, Waterford, Ireland.

出版信息

BMC Health Serv Res. 2020 Nov 19;20(1):1052. doi: 10.1186/s12913-020-05910-2.

Abstract

BACKGROUND

Physical activity (PA) is a well-established therapeutic modality for the maintenance and improvement of long-term health in cystic fibrosis (CF). Healthcare professionals (HCP) are considered credible and well-placed messengers for the delivery of PA advice. Limited research exists investigating the extent of PA prescription within CF care. This study aimed to identify Irish HCP i) knowledge and practice of, and ii) motivators and barriers to PA prescription, and iii) proposed strategies to optimize PA promotion and prescription in CF populations.

METHODS

HCP from six designated CF centres in Ireland and members of the national physiotherapy CF clinical interest group were invited to participate. Following an expression of interest, each HCP (n = 81) received an email containing the plain language statement and link to the online survey. 48 HCP (physiotherapists n = 24, other n = 24) completed the 30-item investigator-developed survey, which included multiple choice single answer, matrix style and open-ended questions.

RESULTS

Most HCP (81%) acknowledged that discussing PA with CF patients was part of their professional role. Almost all physiotherapists (95%) reported having sufficient knowledge regarding PA prescription, compared to 17% of other HCP. All physiotherapists reported discussing PA at every patient interaction, with 81% employing the current consensus guidelines, compared to 33 and 5% of other HCP, respectively. Among the most common barriers reported by HCP to recommending PA to their CF patients were; lack of motivation and compliance among patients to adhere to PA advice, limited availability of PA programmes to refer their patients to, limited time with patients during clinic visits and a lack of knowledge regarding PA prescription for CF care. Three-quarters of HCP reported a need to improve PA services for CF patients in Ireland.

CONCLUSION

As people with CF are living longer, it is imperative that HCP are expanding their scope of practice to include discussions around PA at every patient visit. Formal educational opportunities in the form of continuing professional development programmes are warranted for CF HCP to optimize long-term patient management and outcomes. There is also a need to develop patient-centered and evidence-based PA programmes underpinned by theories of behaviour change to enhance motivation and compliance among CF patients.

摘要

背景

体育活动(PA)是一种公认的用于维持和改善囊性纤维化(CF)患者长期健康的治疗方式。医疗保健专业人员(HCP)被视为提供PA建议的可信且合适的传达者。关于CF护理中PA处方程度的研究有限。本研究旨在确定爱尔兰的HCP:i)对PA的知识和实践,ii)PA处方的动机和障碍,以及iii)在CF人群中优化PA推广和处方的建议策略。

方法

邀请了来自爱尔兰六个指定CF中心的HCP以及国家物理治疗CF临床兴趣小组的成员参与。在表达兴趣后,每位HCP(n = 81)收到一封包含通俗易懂声明和在线调查链接的电子邮件。48名HCP(物理治疗师n = 24,其他n = 24)完成了由研究者开发的30项调查,其中包括多项选择题、矩阵式问题和开放式问题。

结果

大多数HCP(81%)承认与CF患者讨论PA是他们专业角色的一部分。几乎所有物理治疗师(95%)报告对PA处方有足够的了解,而其他HCP中这一比例为17%。所有物理治疗师报告在每次与患者互动时都会讨论PA,其中81%采用当前的共识指南,而其他HCP的这一比例分别为33%和5%。HCP报告的向CF患者推荐PA的最常见障碍包括:患者缺乏坚持PA建议的动力和依从性、可供转诊患者的PA项目有限、门诊就诊时与患者相处时间有限以及对CF护理的PA处方缺乏了解。四分之三的HCP报告需要改善爱尔兰CF患者的PA服务。

结论

随着CF患者寿命的延长,HCP必须扩大其实践范围,在每次患者就诊时都纳入关于PA的讨论。以持续专业发展项目形式提供的正规教育机会对于CF HCP优化长期患者管理和治疗效果是必要的。还需要开发以患者为中心且基于证据的PA项目,以行为改变理论为支撑,增强CF患者的动力和依从性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4e76/7678110/9fc51c3b54f8/12913_2020_5910_Fig1_HTML.jpg

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