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一项关于自闭症个体如何应对创伤的自我及照顾者观点的定性研究。

A Qualitative Study of Self and Caregiver Perspectives on How Autistic Individuals Cope With Trauma.

作者信息

Ng-Cordell Elise, Rai Anika, Peracha Hira, Garfield Tamara, Lankenau Stephen E, Robins Diana L, Berkowitz Steven J, Newschaffer Craig, Kerns Connor M

机构信息

Department of Psychology, University of British Columbia, Vancouver, BC, Canada.

A. J. Drexel Autism Institute, Drexel University, Philadelphia, PA, United States.

出版信息

Front Psychiatry. 2022 Jul 14;13:825008. doi: 10.3389/fpsyt.2022.825008. eCollection 2022.

Abstract

BACKGROUND

Coping can moderate the relationship between trauma exposure and trauma symptoms. There are many conceptualisations of coping in the general population, but limited research has considered how autistic individuals cope, despite their above-average rates of traumatic exposure.

OBJECTIVES

To describe the range of coping strategies autistic individuals use following traumatic events.

METHODS

Fourteen autistic adults and 15 caregivers of autistic individuals, recruited via stratified purposive sampling, completed semi-structured interviews. Participants were asked to describe how they/their child attempted to cope with events they perceived as traumatic. Using an existing theoretical framework and reflexive thematic analysis, coping strategies were identified, described, and organized into themes.

RESULTS

Coping strategies used by autistic individuals could be organized into 3 main themes: (1) Engaging with Trauma, (2) Disengaging from Trauma, and (3) Self-Regulatory Coping. After the three main themes were developed, a fourth integrative theme, Diagnostic Overshadowing, was created to capture participants' reports of the overlap or confusion between coping and autism-related behaviors.

CONCLUSIONS

Autistic individuals use many strategies to cope with trauma, many of which are traditionally recognized as coping, but some of which may be less easily recognized given their overlap with autism-related behaviors. Findings highlight considerations for conceptualizing coping in autism, including factors influencing how individuals cope with trauma, and how aspects of autism may shape or overlap with coping behavior. Research building on these findings may inform a more nuanced understanding of how autistic people respond to adversity, and how to support coping strategies that promote recovery from trauma.

摘要

背景

应对方式可以调节创伤暴露与创伤症状之间的关系。在普通人群中有许多应对方式的概念,但尽管自闭症个体遭受创伤的比例高于平均水平,却只有有限的研究考虑过他们是如何应对的。

目的

描述自闭症个体在经历创伤事件后所使用的应对策略范围。

方法

通过分层目的抽样招募了14名自闭症成年人和15名自闭症个体的照顾者,他们完成了半结构化访谈。参与者被要求描述他们/他们的孩子如何试图应对他们认为具有创伤性的事件。使用现有的理论框架和反思性主题分析,确定、描述应对策略并将其组织成主题。

结果

自闭症个体使用的应对策略可分为3个主要主题:(1)直面创伤,(2)远离创伤,以及(3)自我调节应对。在确定这三个主要主题后,创建了第四个综合主题“诊断性掩盖”,以捕捉参与者关于应对与自闭症相关行为之间重叠或混淆的报告。

结论

自闭症个体使用多种策略来应对创伤,其中许多策略传统上被认为是应对方式,但有些策略由于与自闭症相关行为重叠,可能不太容易被识别。研究结果突出了在自闭症中概念化应对方式时需要考虑的因素,包括影响个体应对创伤的因素,以及自闭症的各个方面如何塑造应对行为或与之重叠。基于这些发现的研究可能有助于更细致地理解自闭症患者如何应对逆境,以及如何支持促进从创伤中恢复的应对策略。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3141/9329569/1b675737822d/fpsyt-13-825008-g0001.jpg

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