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支气管扩张症患儿身体活动的障碍与促进因素:来自儿童及其家长的观点

Barriers and facilitators of physical activity in children with bronchiectasis: Perspectives from children and parents.

作者信息

Jones Taryn, Baque Emmah, O'Grady Kerry-Ann F, Goyal Vikas, Chang Anne B, Trost Stewart G

机构信息

School of Exercise and Nutrition Sciences, Queensland University of Technology, Brisbane, QLD, Australia.

School of Health Sciences and Social Work, Griffith University, Brisbane, QLD, Australia.

出版信息

Front Pediatr. 2022 Oct 5;10:974363. doi: 10.3389/fped.2022.974363. eCollection 2022.

Abstract

BACKGROUND

Current bronchiectasis management guidelines recommend regular physical activity but a large proportion of children with bronchiectasis do not meet public health recommendations which call for 60 min or more of moderate-to-vigorous intensity physical activity daily. Knowing the factors that influence physical activity in children with bronchiectasis is necessary for the development of effective interventions to increase physical activity in this patient group. The objective of this study was to identify facilitators and barriers to physical activity in children with bronchiectasis unrelated to cystic fibrosis (CF) from the perspectives of children and their parents.

MATERIALS AND METHODS

This was a qualitative study informed by the theoretical domains framework (TDF). Children aged 7-15 years (8.8 years, 8.4-11.0) (median, interquartile range) and parents (45.8 years, 39.7-48.3) completed separate, semi-structured interviews ( = 21). Recordings were transcribed verbatim, and barriers and facilitators related to each TDF domain deductively coded. Emergent themes were inductively derived via consensus moderation.

RESULTS

From the perspectives of children, fun with friends, organized sport and activities, and family co-participation in physical activity emerged as facilitators. Inability to keep up with their peers and time on technology emerged as barriers. From the perspectives of parents, instrumental and logistic support for physical activity and supportive social and physical activity environments emerged as facilitators, while management of symptoms associated with bronchiectasis emerged as a barrier.

CONCLUSION

Programs to increase physical activity in children with bronchiectasis should be fun, accessible, provide opportunities for social interaction and address barriers related to exercise tolerance, perceived competence, and presence of respiratory symptoms.

摘要

背景

当前支气管扩张症管理指南建议进行规律的体育活动,但很大一部分支气管扩张症患儿未达到公共卫生建议,即每日进行60分钟或更长时间的中等至剧烈强度体育活动。了解影响支气管扩张症患儿体育活动的因素,对于制定有效干预措施以增加该患者群体的体育活动量十分必要。本研究的目的是从患儿及其父母的角度,确定非囊性纤维化(CF)相关性支气管扩张症患儿体育活动的促进因素和障碍。

材料与方法

这是一项基于理论领域框架(TDF)的定性研究。7至15岁(中位数8.8岁,四分位间距8.4 - 11.0岁)的患儿和父母(中位数45.8岁,四分位间距39.7 - 48.3岁)分别完成了半结构化访谈(n = 21)。访谈录音逐字转录,与每个TDF领域相关的障碍和促进因素进行演绎编码。通过共识审核归纳得出新出现的主题。

结果

从患儿的角度来看,与朋友玩耍、有组织的运动和活动以及家庭共同参与体育活动是促进因素。跟不上同龄人以及花在电子设备上的时间是障碍。从父母的角度来看,对体育活动的工具性和后勤支持以及支持性的社会和体育活动环境是促进因素,而支气管扩张症相关症状的管理是障碍。

结论

增加支气管扩张症患儿体育活动量的项目应该有趣、易于参与,提供社交互动机会,并解决与运动耐量、自我认知能力和呼吸道症状相关的障碍。

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