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“远程康复管理在囊性纤维化中的应用有哪些?”:系统评价方案。

"What Are the Applications for Remote Rehabilitation Management in Cystic Fibrosis?": A Scoping Review Protocol.

机构信息

Department of Paediatrics Specialistics, IRCCS Bambino Gesù Paediatric Children's Hospital, Piazza di Sant'Onofrio 4, 00165 Rome, Italy.

Department of Neurological and Rehabilitation Sciences, IRCCS San Raffaele Roma, Via della Pisana 235, 00163 Rome, Italy.

出版信息

Int J Environ Res Public Health. 2022 Oct 27;19(21):14014. doi: 10.3390/ijerph192114014.

Abstract

BACKGROUND

Telemedicine is an effective, widely used strategy in the field of cystic fibrosis management. The objective of this scoping review is to summarize and analyze the scientific literature with the special focus on the tools and the strategies used in patients with a chronic disease, such as cystic fibrosis.

METHODS

This scoping review will be performed in accordance with the Joanna Briggs Institute methodology. In this context, the planned scoping review is a research synthesis that will map the literature on the applications of telemedicine and telemonitoring to the management of cystic fibrosis, with the aim to identify key concepts in the research and work to be conducted that may impact clinical practice. Studies will be included if they meet the following population, concept, and context criteria: all patients with cystic fibrosis receiving treatment with the tools of telemedicine and telemonitoring. No study design, publication type, or data restrictions will be applied. MEDLINE, Scopus, CINHAL, Pedro, Embase, Web of Science, ACM Digital Library, Health Technology Assessment Database (HTA), and Cochrane Central will be searched up to September 2022.

DISCUSSION

To the best of our knowledge, this will be the first scoping review to provide a comprehensive overview of the topic. The results could add meaningful information for future research and, especially, for clinical practice, when implementing telerehabilitation in cystic fibrosis treatment. Furthermore, we expect that our work may identify possible knowledge gaps on the topic. The results of this research will be published in a peer-reviewed journal and will be presented at relevant international scientific events, such as in congress or meetings.

摘要

背景

远程医疗是囊性纤维化管理领域中一种有效且广泛应用的策略。本综述的目的是总结和分析科学文献,特别关注用于慢性病患者(如囊性纤维化)的工具和策略。

方法

本综述将按照乔安娜·布里格斯研究所的方法进行。在这种情况下,计划进行的范围综述是一种研究综合,将对远程医疗和远程监测在囊性纤维化管理中的应用文献进行映射,旨在确定研究中的关键概念和可能影响临床实践的工作。如果研究符合以下人群、概念和背景标准,将纳入研究:所有接受远程医疗和远程监测工具治疗的囊性纤维化患者。不应用研究设计、出版物类型或数据限制。将对 MEDLINE、Scopus、CINHAL、Pedro、Embase、Web of Science、ACM 数字图书馆、卫生技术评估数据库(HTA)和 Cochrane Central 进行检索,检索时间截至 2022 年 9 月。

讨论

据我们所知,这将是第一篇全面概述该主题的范围综述。研究结果可为未来的研究,特别是在囊性纤维化治疗中实施远程康复时的临床实践提供有意义的信息。此外,我们希望我们的工作可以确定该主题的可能知识空白。这项研究的结果将发表在同行评议的期刊上,并将在相关的国际科学活动(如会议或会议)上展示。

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本文引用的文献

1
[Italian Cystic Fibrosis Registry (ICFR). Report 2019-2020].
Epidemiol Prev. 2022 Jul-Aug;46(4 Suppl 2):1-38. doi: 10.19191/EP22.4S2.060.
2
Living with cystic fibrosis during the COVID-19 pandemic: a social connectedness perspective.
Int J Qual Stud Health Well-being. 2022 Dec;17(1):2062820. doi: 10.1080/17482631.2022.2062820.
3
The impact of COVID-19 upon the delivery of exercise services within cystic fibrosis clinics in the United Kingdom.
Clin Respir J. 2022 Apr;16(4):335-340. doi: 10.1111/crj.13484. Epub 2022 Mar 1.
4
Telehealth and virtual health monitoring in cystic fibrosis.
Curr Opin Pulm Med. 2021 Nov 1;27(6):544-553. doi: 10.1097/MCP.0000000000000821.
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Paediatr Respir Rev. 2022 Jun;42:23-28. doi: 10.1016/j.prrv.2021.05.002. Epub 2021 May 19.
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Updated methodological guidance for the conduct of scoping reviews.
JBI Evid Synth. 2020 Oct;18(10):2119-2126. doi: 10.11124/JBIES-20-00167.
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Ann Intern Med. 2018 Oct 2;169(7):467-473. doi: 10.7326/M18-0850. Epub 2018 Sep 4.
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